Complex Child is a FREE monthly online magazine written by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand. Articles are on a wide variety of topics ranging from basic information on medical conditions and treatments to advice on how to beat insurance company denials.
Youth For Education, Advocacy, and Healthcare (YEAH) Council is a youth driven and directed group of individuals with disabilities and/or special health care needs. We are focused on developing and strengthening the skills and resources needed to achieve the unique independent life that we each desire. YEAH does this by empowering, educating and supporting individuals and professionals in the areas of education, advocacy and health care.
YEAH Website provides tools to teens and young adults with disabilities and chronic health conditions. “It doesn’t matter if you have a learning difference, a rare disease, a mental health issue, or a physical disability – there’s something here for you that will help navigate the challenges you are facing right now and prepare for the awesomeness that could be your future. We assembled a crew of professionals, advocates, family members, teens and young adults who are constantly scoping out resources and information about six areas related to planning for life now, after high school and beyond. These key areas are advocacy, employment, education, finances, healthcare & leadership.”
The Healthy Homes and Lead Poisoning Prevention Program is a resource to help address the risk of lead poisoning and other health, safety and energy issues that stem from the home environment. Information on healthy homes, lead poisoning prevention, and lead professional licensing.
The American Liver Foundation’s mission is to facilitate, advocate and promote education, support and research for the prevention, treatment and cure of liver disease. Online support community to connect with other patients with liver disease and their families to share experiences, information and support.
The National Kidney Foundation, a major voluntary nonprofit health organization, is dedicated to preventing kidney and urinary tract diseases, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation.
The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. They strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care. They advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.