The Laura Foundation for Autism & Epilepsy

The mission of The Laura Foundation is to provide funding to develop and support therapeutic recreation and educational programs that enrich the quality of lives of individuals with autism and/or seizure disorders. They are located in Madison, NH and can be contacted through their website.

Lennox-Gastaut Foundation

The Lennox-Gastaut Foundation assist families with information, resources and research about FGS. The LGS Foundation’s Patient Assistance Program provides financial assistance to individuals with LGS who live within the United States to help pay for medical expenses not typically covered through insurance or other programs. They also have Seizure Response Dog Grants.

Golden Opportunities for Independence, Inc.

Provides service dogs to those living with physical and psychological disabilities in order to provide greater independence and a higher standard of living. GOFI trains dogs to assist with spinal cord injuries, diabetes alert, seizures, anxiety disorders, Post Traumatic Stress Disorder, connective tissue diseases, chronic pain, and more! In addition to giving their recipients service dogs, they give them an entire support system. Recipients are involved from the beginning of their dog’s training. They provide every recipient with a service dog specifically trained to aid the recipient in daily tasks, from mobility issues and medical alert to general emotional support; weekly training sessions and one-on-one support; social outings with their dog, both group and one on one; fundraising assistance; opportunities to work for GOFI in exchange for fee reductions and continuous support even after graduating from the program.

 

Canine Assistants

Canine Assistants service dogs assist children and adults with physical disabilities or other special needs in a variety of ways. Some of the tasks dogs learn to perform include turning lights on and off, opening and closing doors, pulling wheelchairs, retrieving dropped objects, summoning help, and providing secure companionship.

In addition to service dogs and companion dogs, Canine Assistants also trains and provides seizure response dogs for certain recipients. Following general training, seizure response dogs are trained to perform one of the following behaviors, depending on the recipient’s need: remain next to the person during the course of a seizure, summon help in a controlled environment, or retrieve a phone prior to the seizure when indicated by the recipient. Certain dogs may even develop the ability to predict and react in advance to an oncoming seizure once they are placed with their recipient.

Canine Assistance operates on a needs basis and many of the people who need a service dog most cannot afford one. Therefore, Canine Assistants covers the training, food and medical costs for the life of every dog placed. An application is required and you can expect to be placed on a waiting list.

Epilepsy Foundation

The Epilepsy Foundation provides information and resources on types of seizures, types of Epilepsy Syndromes, diagnosis, treatments, triggers, age and gender issues and much more.

Epilepsy Foundation New England

Epilepsy Foundation New England (EFNE) leads the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives in Maine, Massachusetts, New Hampshire, and Rhode Island. Their website list Epilepsy Centers in New England, educational programs and information on epilepsy for all ages.

State Contacts:

Maine

Sarah Robinson, ME Field Service Manager
Phone: 617-506-6041 x107
srobinson@epilepsynewengland.org

New Hampshire

Chanda Gunn, NH Field Service Manager
Phone: 617-506-6041 x108
cgunn@epilepsynewengland.org

Rhode Island

Christina Vilardi, RI Field Service Manager
Phone: 617-506-6041 x118
cvilardi@epilepsynewengland.org

The Chelsea Hutchison Foundation

The Chelsea Hutchison Foundation exists to raise awareness of SUDEP and use it to grant comfort, hope and positivity to individuals and families living with epilepsy. The foundation provides grants for seizure response dogs for individuals living with epilepsy can help to prevent SUDEP. They also provide epilepsy movement monitors for children with epilepsy and their families so they can have the comfort of knowing their health will be monitored at all times. For more information check out their website.

Josh Provides

Founded by the Chapnick family, JoshProvides is a 501(c)(3) public nonprofit charity, based out of Sarasota, Florida and serving individuals and families throughout the United States. JoshProvides directs its charitable spending to assist in forming Support Groups, Seizure Response Dog Program, and Seizure Alert Devices as well as other ways. For more information about their Financial Support Program visit their website.