Visual supports like picture-based booklets help children and those with disabilities manage new or unfamiliar experiences. The Children’s National Hospital’s Center for Autism Spectrum Disorders, Pediatric Health Network and Beyond the Spectrum program have put together this story to help children understand some of the changes we have made in our daily lives due to COVID-19.
Because our staff are all parents of children/young adults with special healthcare needs we are working from home and supporting families and professionals through e-mail and social media. Book and materials request will be delayed until self-quarantines are no longer needed. Thank-you for your patience as we join you and others in keeping all safe.
In this podcast released by The YEAH Council (Youth for Education Advocacy and Healthcare) young people discuss something others may not understand, what it’s like to have a disability or special healthcare need while trying to live life as a youth. In this episode, YEAH members Emma Parcells, 16 at the time of recording, living with CRPS, Pots and other diagnoses and Martin Harvey-Olson, a 16 at the time of recording living with Lyme Disease discuss the various ways that their conditions effect their day to day lives. This episode was facilitated by Karin Harvey-Olson and recorded by Jennifer Pineo. (Transcript: YEAH, My Differently Abled Life)
NH Family Voices staff sits down with Dr.Nina Sand-Loud, Developmental Behavioral Pediatrician at Children’s Hospital at Dartmouth Hitchcock Medical Center and has a conversation about developmental screening, tools and questionnaires used, the role of parents, and the benefits it provides to growing children.
New year, New Guidance for pediatricians… while this clinical report was released in 2019 in Pediatrics, it is NEW and serves as the first AAP update in a decade for pediatricians as to screening, diagnosis and treatment guidelines for Autism. While this report is intended to guide pediatricians, it is equally as important to guide families in what to expect, what to seek and how to better partner with providers for our kiddos!
Watch Me Grow (WMG) helps families to track their child’s growth and development. It is NH’s developmental screening, referral and information system for families of children ages birth to six years.To learn more go to Watch Me Grow NH.
This guidebook is formatted to take the reader from birth to adolescents transitioning into adulthood with listings of state health and human services agencies, educational resources, private associations and organizations that serve people with physical, developmental, mental health and chronic health conditions and their families. We have also added organizations and services that can be accessed by all state residents, such as housing, childcare, etc. All links within the document are hot linked for easy access.
If you would like a hard copy of the resource guide please call (603) 271-4525 or Email to email@example.com or use the ‘Contact Us’ form on the website. The resource guide is free to families but to offset printing and postage we hope you will consider a donation of $15 to assist us with ongoing printing.