CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome. The CLOVES Syndrome Community… More CLOVES Syndrome Community
This genetic disorder has three forms: NF1, NF2, and Schwannomatosis. NF1 affects 1 in 3,000 births and causes tumors to… More Neurofibromatosis (NF) The Littlest Tumor Foundation
Rare New England’s mission is to bring together New England patients, families and providers touched by rare and complex disorders.… More Rare New England
The CdLS Foundation provides a host of services that educate and unite families touched by this little-known genetic syndrome.
Teachers and parents use GEMSS to better understand the needs of students who have genetic conditions. If you support a child… More GEMSS – Genetics Educational Materials for School Success
The mission of the New England Regional Genetics Network (NERGN) is to promote and improve health and social well-being of… More New England Regional Genetics Network (NERGN)
This network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and… More Genetic Alliance
The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved… More Autoinflammatory Alliance
Genes in Life is a place to learn about all the ways genetics is a part of your life. On… More Genes in Life
NOAH is a organization that offers information and support to people with albinism, their families and the professionals who work with them.