The Myotonic Dystrophy Foundation is the world’s largest myotonic dystrophy (DM) patient advocacy organization, connecting people living with DM in… More Myotonic Dystrophy Foundation
Resource Categories: Muscular Dystrophy
FSHD Society
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. Typically beginning in… More FSHD Society
Parent Project Muscular Dystrophy
A nonprofit organization focusing on Duchenne muscular dystrophy. PPMD funds research, raises awareness, promotes advocacy, connects the community, and broadens… More Parent Project Muscular Dystrophy
Muscular Dystrophy Association
The MDA offers information about specific services and how to best utilize these many resources, which can make a critical… More Muscular Dystrophy Association