The Myotonic Dystrophy Foundation is the world’s largest myotonic dystrophy (DM) patient advocacy organization, connecting people living with DM in more than 78 countries around the world. MDF support programs are led by trained volunteer community members. Volunteers respect the privacy and confidentiality of anything shared in these programs and can refer you to MDF’s trusted, credible information and resources.
Web: Web site
Phone: (415) 800-7777