Rare New England’s mission is to bring together New England patients, families and providers touched by rare and complex disorders. They offer educational opportunities, create awareness of available resources, and build foundations for support to improve patient quality of life. This organization offers patient and family support, highlights NE region’s medical and community resources, connects patients to appropriate national support and advocacy groups, and creates educational opportunities for New England patients and providers to advance care and quality of life for rare disorder patients and their families.
Web: Web site
Phone: (508) 699-4035