The Hydrocephalus Association provides support, education and advocacy for people whose lives have been touched by hydrocephalus and the professionals who work with them. They strive to ensure that families are empowered with educational materials, informed about the latest research, and have access to quality health care. They advocate for increased research and funding to advance understanding, improve diagnosis and treatment, and find a cure.
Link: Hydrocephalus Association
Phone: (301) 202-3811 / (888) 598-3789