This book is a guide and a source of support for parents of children with long-term illnesses. The author states…
Extreme Parenting: Parenting Your Child with a Chronic Illness
Book Categories: Chronic Illness/Health Conditions
Forever Hellos, Hard Goodbyes: Inspiration, Wit & Wisdom From Courageous Kids Facing Life-Threatening Illness
When facing a life-challenging or even terminal illness, it’s all about being normal. That’s what kids and teens want for…
Fuzzy & Frankie
A story that helps children deal with serious illness and medical treatment. Ages 4 and up.
Grateful For Gluten-Free
This is a delightful story about a young girl named Gabby who has celiac disease. Gabby cannot eat foods with…
Growing Up With Crohn’s Disease: What Every Family Should Know
This video is packed with practical advice on disease education, lifestyle management and emotional support. 12 modules of information, includes…
Hope And Destiny: The Patient And Parent’s Guide To Sickle Cell Disease And Sickle Cell Trait
Provides clear-cut and in-depth information on living with the illness. It offers the latest information on preventing complications, research, and…
I Have Eczema
For Emma, eczema means sticky, wrinkly clothes and lotion in her hair. Her skin is itchy, and rashy, and RED….
I Still Dream Big: Stories Of Teens Living With Chronic Illness
Kelly was a seventeen-year-old star of her high school basketball team . . . Gevon was a twelve-year-old who played…
Imagine A Rainbow: A Child’s Guide To Soothing Pain
Through a series of beautiful illustrations that engage all of the senses, each accompanied by a verse couplet, this book…
In a Pickle Over PANDAS
This book is about a young boy’s journey with PANDAS, an acronym for Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus….
It’s Not Just Growing Pains: A Guide To Childhood Muscle, Bone, And Joint Pain, Rhematic Diseases, and the Latest Treatments
Here is a readable, reliable guide to the common causes of bone, joint, muscle, and arthritis pain in children, designed…
Just Like Me!!! A Story for Beginners with Sickle Cell Disease
Just Like Me!! is a picture book designed for young children with sickle cell disease. Filled with colorful pictures and…
Kasey and Ivy
Through twenty-six letters to her friend Nina, twelve-year-old Kasey chronicles the often humorous observations and impressions of her unexpected, month-long…
Learning to Cope with CRPS / RSD: Putting Life First and CRPS / RSD Second
With the help of this compact guide, anyone suffering from CRPS (Complex Regional Pain Syndrome) (also known as RSD –…
Little Tree: A Story For Children With Serious Medical Problems
One night, during a terrible storm, Little Tree’s branches are hurt. Her friend Amanda the squirrel calls upon the Tree…
Living with a Special Need: Chronic Illness
Not every sickness goes away in a few days or weeks. Unfortunately, some can last for months, years, or even…
Mommy’s Story: An Introduction for Younger Children about a Parent’s MS
This book encourages parents with multiple sclerosis to begin the conversation about the diagnosis and ongoing implications of MS with…
Moving on with Mito: A Guide for Teens and Young Adults Living with Mitochondrial Disorders
Moving on with Mito: A Guide for Teens and Young Adults Living with Mitochondrial Disorders was written by Rob Auffrey,…
My Central Line
My Central Line is a book for children who have received a Hickman Central Line for cancer therapy and other…
My Invisible Cosmic Zebra Has Crohn’s Disease – Now What?
Written from a non-medical perspective, patients ages teen through young adult and caregivers/parents of tweens ages 6-12 can use the…
My Life Beyond Neurofibromatosis: A Mayo Clinic Patient Story
Leo, a boy with neurofibromatosis, is visiting New York with his family after some treatment. But everywhere they go, mysterious…
My Mighty Mito Book: A Book for Children Who Have Mitochondrial Disease
This book is about Joshua who lives daily with the difficult symptoms and effects of mitochondrial disease. Joshua is a…
My Port
My Port is a short book about a child who has an implantable venous access port. It is useful for…
My Stupid Illness
This activity book provides children and families with life-threating illnesses such as Cancer, AIDS, burns, CF, an opportunity to document…