Eternally Gluten-free is a cookbook full of sweets, from breakfast, to drinks and desserts. The book also includes a short about living with Celiac disease.“If you or a family member has to eat gluten-free, ‘Eternally Gluten-Free’ will show you what you’re not missing. Cura’s inspiring story and tasty dessert, drink and breakfast recipes will show… More Eternally Gluten-Free – A Cookbook of Sweets and Inspiration, From a Teen!
Book Categories: Chronic Illness/Health Conditions
Extraordinary! A Book for Children with Rare Diseases
What makes a child with a rare disease extraordinary? Explore the answer to this question while sharing an illustrated conversation with Evren Ayik about what he has learned while growing up with his own rare disease. Written collaboratively by mother and son this book opens up a child-friendly discussion about identity, inclusion, and self-concept in… More Extraordinary! A Book for Children with Rare Diseases
Extreme Parenting: Parenting Your Child with a Chronic Illness
This book is a guide and a source of support for parents of children with long-term illnesses. The author states that helping parents cope with their child’s condition ultimately helps the child, and that parents are better able to live a full, enjoyable life if they have strategies and knowledge to cope with the difficulties… More Extreme Parenting: Parenting Your Child with a Chronic Illness
Forever Hellos, Hard Goodbyes: Inspiration, Wit & Wisdom From Courageous Kids Facing Life-Threatening Illness
When facing a life-challenging or even terminal illness, it’s all about being normal. That’s what kids and teens want for themselves and from the people around them. With wit, wisdom, and courage, young people ages 7–21 tell in their own words what it’s like to be ill while trying to live each minute of their… More Forever Hellos, Hard Goodbyes: Inspiration, Wit & Wisdom From Courageous Kids Facing Life-Threatening Illness
Fuzzy & Frankie
A story that helps children deal with serious illness and medical treatment. Ages 4 and up.
Grateful For Gluten-Free
This is a delightful story about a young girl named Gabby who has celiac disease. Gabby cannot eat foods with wheat or gluten, so she loves when her Mom makes her favorite gluten-free food—PANCAKES! Gabby’s journey helps her discover how grateful she is to live gluten-free, not only because it’s delicious, but because it’s fun too!… More Grateful For Gluten-Free
Growing Up With Crohn’s Disease: What Every Family Should Know
This video is packed with practical advice on disease education, lifestyle management and emotional support. 12 modules of information, includes personal experiences of both parents and children. Available in DVD format.
Hope And Destiny: The Patient And Parent’s Guide To Sickle Cell Disease And Sickle Cell Trait
Provides clear-cut and in-depth information on living with the illness. It offers the latest information on preventing complications, research, and treatment. The knowledge patients and family members need is organized in an easy-to-read format that promotes overall healthy living..
I Have Eczema
For Emma, eczema means sticky, wrinkly clothes and lotion in her hair. Her skin is itchy, and rashy, and RED. And sometimes, she is simply cranky about all this skin care! Bring your family into Emma’s world and see your little one agree with Emma as she goes through a lighthearted day coping with eczema.… More I Have Eczema
I Still Dream Big: Stories Of Teens Living With Chronic Illness
Kelly was a seventeen-year-old star of her high school basketball team . . . Gevon was a twelve-year-old who played linebacker for his middle school football team . . . Crystle was a nineteen-year-old college student with big plans for the future . . . One day you’re hanging out with friends at the mall,… More I Still Dream Big: Stories Of Teens Living With Chronic Illness
Imagine A Rainbow: A Child’s Guide To Soothing Pain
Through a series of beautiful illustrations that engage all of the senses, each accompanied by a verse couplet, this book asks the child to imagine several things to cope with pain. Some are calming, some are delighting, some are empowering, some are inspirational. As a group they are intended to introduce the child to the… More Imagine A Rainbow: A Child’s Guide To Soothing Pain
In a Pickle Over PANDAS
This book is about a young boy’s journey with PANDAS, an acronym for Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus. He wakes up one morning, and overnight, is stricken with unusual and frightening symptoms that turn his world upside down. Some of the symptoms he experiences are anxiety & OCD. This happened all because an… More In a Pickle Over PANDAS
It’s Not Just Growing Pains: A Guide To Childhood Muscle, Bone, And Joint Pain, Rhematic Diseases, and the Latest Treatments
Here is a readable, reliable guide to the common causes of bone, joint, muscle, and arthritis pain in children, designed to help parents and physicians understand these disorders, arrive at the proper diagnosis, and choose the most effective treatment. In this comprehensive resource, Dr. Thomas Lehman–the head of one of the most prestigious pediatric rheumatology… More It’s Not Just Growing Pains: A Guide To Childhood Muscle, Bone, And Joint Pain, Rhematic Diseases, and the Latest Treatments
Just Like Me!!! A Story for Beginners with Sickle Cell Disease
Just Like Me!! is a picture book designed for young children with sickle cell disease. Filled with colorful pictures and simple concepts, this resource is an easy reference for children to use when they have questions about their disease. For ages 4-8 (Note: This booklet is available to borrow or to download)
Just Like You
A book about a little boy getting ready for his first day of pre-school. You will meet his family and some of the animals on his farm and oh yes, you will learn about his trach. Mommy and big sister go to school and explain to the children about Slade’s trach. The kids ask questions… More Just Like You
Little Tree: A Story For Children With Serious Medical Problems
One night, during a terrible storm, Little Tree’s branches are hurt. Her friend Amanda the squirrel calls upon the Tree Wizards of the Forest to help, and they explain that they will have to remove Little Tree’s branches in order to save her life. With Amanda’s help, Little Tree learns to accept her new, changed… More Little Tree: A Story For Children With Serious Medical Problems
Living with a Special Need: Chronic Illness
Not every sickness goes away in a few days or weeks. Unfortunately, some can last for months, years, or even the rest of a person’s life. When this happens, it is called a chronic illness. It can cause many difficulties in people’s lives, besides the illness itself. With some determination and help from friends and… More Living with a Special Need: Chronic Illness
Mommy’s Story: An Introduction for Younger Children about a Parent’s MS
This book encourages parents with multiple sclerosis to begin the conversation about the diagnosis and ongoing implications of MS with young children. This 16-page book is geared for children ages three to seven. Mommy’s Story: An Introduction for Younger Children about a Parent’s MS
Moving on with Mito: A Guide for Teens and Young Adults Living with Mitochondrial Disorders
Moving on with Mito: A Guide for Teens and Young Adults Living with Mitochondrial Disorders was written by Rob Auffrey, MA, Emerson College, Susan Waisbren, PhD, Boston Children’s Hospital, Harvard Medical School and Freedom Baird, MS, Boston Children’s Hospital This guide is for adolescents transitioning to adulthood, living with mitochondrial disorders to help them succeed… More Moving on with Mito: A Guide for Teens and Young Adults Living with Mitochondrial Disorders
My Invisible Cosmic Zebra Has Crohn’s Disease – Now What?
Written from a non-medical perspective, patients ages teen through young adult and caregivers/parents of tweens ages 6-12 can use the 100-page workbook as a resource tool for understanding the myriad of funny-but-not-so-funny non-medical challenges they might encounter after diagnosis. The workbook is full of concrete and practical advice, thought-provoking ideas, coloring pages, and lots of… More My Invisible Cosmic Zebra Has Crohn’s Disease – Now What?