Eternally Gluten-Free – A Cookbook of Sweets and Inspiration, From a Teen!

Eternally Gluten-free is a cookbook full of sweets, from breakfast, to drinks and desserts. The book also includes a short about living with Celiac disease.“If you or a family member has to eat gluten-free, ‘Eternally Gluten-Free’ will show you what you’re not missing. Cura’s inspiring story and tasty dessert, drink and breakfast recipes will show… More Eternally Gluten-Free – A Cookbook of Sweets and Inspiration, From a Teen!

Forever Hellos, Hard Goodbyes: Inspiration, Wit & Wisdom From Courageous Kids Facing Life-Threatening Illness

When facing a life-challenging or even terminal illness, it’s all about being normal. That’s what kids and teens want for themselves and from the people around them. With wit, wisdom, and courage, young people ages 7–21 tell in their own words what it’s like to be ill while trying to live each minute of their… More Forever Hellos, Hard Goodbyes: Inspiration, Wit & Wisdom From Courageous Kids Facing Life-Threatening Illness

Fuzzy & Frankie

A story that helps children deal with serious illness and medical treatment. Ages 4 and up.

Grateful For Gluten-Free

This is a delightful story about a young girl named Gabby who has celiac disease. Gabby cannot eat foods with wheat or gluten, so she loves when her Mom makes her favorite gluten-free food—PANCAKES! Gabby’s journey helps her discover how grateful she is to live gluten-free, not only because it’s delicious, but because it’s fun too!… More Grateful For Gluten-Free

I Have Eczema

For Emma, eczema means sticky, wrinkly clothes and lotion in her hair. Her skin is itchy, and rashy, and RED. And sometimes, she is simply cranky about all this skin care! Bring your family into Emma’s world and see your little one agree with Emma as she goes through a lighthearted day coping with eczema.… More I Have Eczema

In a Pickle Over PANDAS

Book Cover, In a Pickle Over PANDAS

This book is about a young boy’s journey with PANDAS, an acronym for Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus. He wakes up one morning, and overnight, is stricken with unusual and frightening symptoms that turn his world upside down. Some of the symptoms he experiences are anxiety & OCD. This happened all because an… More In a Pickle Over PANDAS

It’s Not Just Growing Pains: A Guide To Childhood Muscle, Bone, And Joint Pain, Rhematic Diseases, and the Latest Treatments

Here is a readable, reliable guide to the common causes of bone, joint, muscle, and arthritis pain in children, designed to help parents and physicians understand these disorders, arrive at the proper diagnosis, and choose the most effective treatment. In this comprehensive resource, Dr. Thomas Lehman–the head of one of the most prestigious pediatric rheumatology… More It’s Not Just Growing Pains: A Guide To Childhood Muscle, Bone, And Joint Pain, Rhematic Diseases, and the Latest Treatments

Just Like Me!!! A Story for Beginners with Sickle Cell Disease

Just Like Me!! is a  picture book designed for young children with sickle cell disease. Filled with colorful pictures and simple concepts, this resource is an easy reference for children to use when they have questions about their disease. For ages 4-8 (Note: This booklet is available to borrow or to download)

Just Like You

A book about a little boy getting ready for his first day of pre-school. You will meet his family and some of the animals on his farm and oh yes, you will learn about his trach. Mommy and big sister go to school and explain to the children about Slade’s trach. The kids ask questions… More Just Like You

Moving on with Mito: A Guide for Teens and Young Adults Living with Mitochondrial Disorders

Moving on with Mito: A Guide for Teens and Young Adults Living with Mitochondrial Disorders was written by Rob Auffrey, MA, Emerson College, Susan Waisbren, PhD, Boston Children’s Hospital, Harvard Medical School and Freedom Baird, MS, Boston Children’s Hospital This guide is for adolescents transitioning to adulthood, living with mitochondrial disorders to help them succeed… More Moving on with Mito: A Guide for Teens and Young Adults Living with Mitochondrial Disorders

My Invisible Cosmic Zebra Has Crohn’s Disease – Now What?

Written from a non-medical perspective, patients ages teen through young adult and caregivers/parents of tweens ages 6-12 can use the 100-page workbook as a resource tool for understanding the myriad of funny-but-not-so-funny non-medical challenges they might encounter after diagnosis. The workbook is full of concrete and practical advice, thought-provoking ideas, coloring pages, and lots of… More My Invisible Cosmic Zebra Has Crohn’s Disease – Now What?