This book provides info on: making the transplant decision, choosing a transplant team, how a match is determined, the transplant…
Organ Transplants: Making The Most Of Your Gift Of Life
Book Categories: Chronic Illness/Health Conditions
Our Immune System: A Story For Children With Primary Immunodeficiency Diseases
Our Immune System: A Story For Children With Primary Immunodeficiency Diseases – Colorful, cartoon illustrations and simple explanations show children…
Pain Control: A Guide For People With Cancer And Their Families
Pain Control: A Guide For People With Cancer And Their Families – Discusses types of pain management – including medications,…
PANDAS and PANS in School Settings: A Handbook for Educators
PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Strep) and PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome) occur when an abnormal immune response…
Parenting a Child with Life-Limiting Illness (DVD)
This film was produced by National Tay-Sachs & Allied Diseases Association (NTSAD) to lessen the feelings of isolation that newly…
Pots – Together We Stand: Riding the Waves of Dysautonomia
Included are clear explanations of medical information regarding Postural Orthostatic Tachycardia Syndrome (POTS), evidenced-based research, best practices for clinical diagnoses…
Raising Your Celiac Child: Guidelines For A Gluten-Free Life
This video will assist you in the needs for your newly diagnosed child to lead a healthy and gluten-free life. Twelve modules…
Rare but Not Alone: Raising Kids with Cyclic Vomiting Syndrome
“It’s just a virus.” “Oh, they will grow out of it.” “Your child is doing this for attention.” These are…
Relieve Your Child’s Chronic Pain
Chronic pain in children can manifest as abdominal, migraine, or facial pain. It also stems from a wide variety of…
RSD In Me! A Patient And Caretaker Guide To Reflex Sympathetic Dystrophy And Other Chronic Pain Conditions
This book goes through all aspects of Reflex Sympathetic Dystrophy Syndrome (RSD/CRPS) including definition, causes, tips on dealing with healthcare…
Shared Struggles: Stories from Parents and Pediatricians Caring for Children with Serious Illnesses
This book tells true and poignant stories from both sides of the physician-patient/parent relationship and provides a unique glimpse into…
Snow White’s Seven Patches: A Vitiligo Fairy Tale
This is a modern-day story with the classical theme of good conquering evil. You’ll find the age-old ingredients of a…
Taking My Medicine: Seeing Sickle Cell Anemia Through My Eight Year Old Eyes
Egypt wrote her story to share with other young children who have Sickle Cell Anemia. Through photos and simple explanations…
The Abilities in Me Hydrocephalus
Explore the day in the life of a young boy with Hydrocephalus through bright, colorful illustrations and text. Perfect for…
The Abilities in Me Tracheostomy
Explore the day in the life of a young boy living with a Tracheostomy, through bright, colorful illustrations and text….
The Abilities in Me Tube Feeding
Explore the journey of a young girl who tells her story of being tube fed through bright, colorful illustrations and…
The Caleb Years
The Caleb Years is a faith filled account of a father’s journey through the treacherous waters of uncertainty, the deep…
The Chicken Who Saved Us: The Remarkable Story of Andrew and Frightful
Eight-year-old Andrew is autistic and bilingual. He speaks English–and Chicken. With words limited by autism, Andrew lives in a fantastic…
The Day I Got My NG Tube
Mya Lin Terry is a nine year old pediatric cancer patient, in the fourth grade. Mya enjoys writing, drawing, cooking,…
The Dysautonomia Project Understanding Autonomic Nervous System Disorders for Physicians and Patients
The Dysautonomia Project” is a much needed tool for physicians, patients, or caregivers looking to arm themselves with the power…
The Girl With No Hair: A Story About Alopecia Areata
A young girl talks about first losing her hair in elementary school, and how she has learned to deal with…
The Ostomy Toolkit
The Ostomy Toolkit was created and designed for and by pediatric patients who have had, or are having, ostomy surgery…
The Perfect Shelter
At first nobody knew. Then they told me my sister was sick. But together we’ll ride out the storms. And…
The Princess Who Lost Her Hair: An Akamba Legend
A vain princess loses her prized hair, and learns, through the help of a wise poor boy, that all creatures,…