The Dysautonomia Project” is a much needed tool for physicians, patients, or caregivers looking to arm themselves with the power… More The Dysautonomia Project Understanding Autonomic Nervous System Disorders for Physicians and Patients
The Dysautonomia Project Understanding Autonomic Nervous System Disorders for Physicians and Patients
The Weighted Blanket Guide: Everything You Need to Know about Weighted Blankets and Deep Pressure for Autism, Chronic Pain, and Other Conditions
Based on the latest research, this book dispels the online myths surrounding weighted blankets. It delivers clear information for occupational… More The Weighted Blanket Guide: Everything You Need to Know about Weighted Blankets and Deep Pressure for Autism, Chronic Pain, and Other Conditions
Rare but Not Alone: Raising Kids with Cyclic Vomiting Syndrome
“It’s just a virus.” “Oh, they will grow out of it.” “Your child is doing this for attention.” These are… More Rare but Not Alone: Raising Kids with Cyclic Vomiting Syndrome
Bendy Wendy and the (Almost) Invisible Genetic Syndrome: A Story of One Tween’s Diagnosis of Ehlers-Danlos Syndrome / Joint Hypermobility
This book was written for families, children, and tweens that find themselves in a position of understanding and explaining, in… More Bendy Wendy and the (Almost) Invisible Genetic Syndrome: A Story of One Tween’s Diagnosis of Ehlers-Danlos Syndrome / Joint Hypermobility
Moving on with Mito: A Guide for Teens and Young Adults Living with Mitochondrial Disorders
Moving on with Mito: A Guide for Teens and Young Adults Living with Mitochondrial Disorders was written by Rob Auffrey,… More Moving on with Mito: A Guide for Teens and Young Adults Living with Mitochondrial Disorders
The Ostomy Toolkit
The Ostomy Toolkit was created and designed for and by pediatric patients who have had, or are having, ostomy surgery… More The Ostomy Toolkit
My Invisible Cosmic Zebra Has Crohn’s Disease – Now What?
Written from a non-medical perspective, patients ages teen through young adult and caregivers/parents of tweens ages 6-12 can use the… More My Invisible Cosmic Zebra Has Crohn’s Disease – Now What?
The Chicken Who Saved Us: The Remarkable Story of Andrew and Frightful
This honest memoir of fierce and faithful parenting takes readers on a heartfelt journey through chronic illness and Asperger’s syndrome… More The Chicken Who Saved Us: The Remarkable Story of Andrew and Frightful
My Wish: For children with a chronic illness or long-term medical issue
A beautifully illustrated and colorful children’s book about a mom whose young child is sick. Her wish is for her… More My Wish: For children with a chronic illness or long-term medical issue
In a Pickle Over PANDAS
This book is about a young boy’s journey with PANDAS, an acronym for Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus.… More In a Pickle Over PANDAS