A Child’s Introduction to Understanding PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococci) is aimed at helping parents explain to…
A Child’s Introduction to Understanding PANDAS
Book Categories: Chronic Illness/Health Conditions
Abby Has Arthritis
Abby is a ten-year old girl who has juvenile arthritis and chronic recurrent multifocal osteomyelitis. From taking medicine to routine…
Alopecia Areata: Understanding And Coping With Hair Loss
Co authored by a woman who lives with Alopecia Areata, this book provides a wealth of information, and a healthy…
An Educator’s /Parent’s Guide: Meeting the Needs of the Ehlers-Danlos Child
Created by the Ehlers-Danlos National Foundation, this guide gives an overview of Ehlers-Danlos, what medical situations may be encountered in…
Because Of Anya
Ten year old Anya wears a wig due to Alopecia. This is as much as story of friendship between Anya and…
Behind My Smile
This book has been written jointly by nine–year-old Bethany and her mum Julie. It highlights the devastating effect that Juvenile…
Bendy Wendy and the (Almost) Invisible Genetic Syndrome: A Story of One Tween’s Diagnosis of Ehlers-Danlos Syndrome / Joint Hypermobility
This book was written for families, children, and tweens that find themselves in a position of understanding and explaining, in…
Both Sides Of The White Coat: An Insider’s Perspectives On The Critically Ill Child
“This book is the result of seven years of fear, uncertainty, and hardship as a family has attempted to cope…
Brave Just Like Me
Lexie has a chronic health condition, and spends a lot of time having test and going to the doctor. She…
Building The Healing Partnership
An empathetic and practical guidebook relevant to the families of chronically and severely ill children and to those who care for them. Observes and…
Captain Kangaroo’s Get Well Elephant
This book helps to explain to children why it is important to take their medicine. Ages 2 and up.
Chronic Kids Constant Hope: Help And Encouragement For Parents Of Children With Chronic Conditions
With the heart and understanding of moms who are living it themselves, Elizabeth Hoekstra and Mary Bradford offer encouragement and…
Complete Tubefeeding
This helpful handbook provides comprehensive and compassionate coverage of all aspects of tube feeding and nutrition via tube, including: The…
Complex Regional Pain Syndrome (CRPS) Explained: For Teenagers, By Teenagers
Complex regional pain syndrome is rare, but can be very disabling. Early management can help. Written for teens, this book…
Conquering Your Child’s Chronic Pain: A Pediatrician’s Guide for Reclaiming a Normal Childhood
This book reveals what parents can do to alleviate their child’s pain on a daily basis. Based on more than…
Coping With Crohn’s Disease
Crohn’s Disease is a chronic and incurable gastrointestinal inflammatory illness of unknown origins. With this book, discover how to maximize…
Daddy’s Story: An Introduction for Younger Children to Learn about a Parent’s Multiple Sclerosis
This book encourages parents with multiple sclerosis to begin the conversation about the diagnosis and ongoing implications of MS with…
Digging Deep: A Journal for Young People Facing Health Challenges
When a child is seriously or chronically ill, parents, friends, and other supportive loved ones want to help. This beautiful…
Easy For You To Say: Q & A’s For Teens Living With Chronic Illness Or Disability
Profiles the lives of uniquely challenged teens as they work hard to make sense of the world and their places in…
Eating Isn’t Always Easy: Ben’s Story about his Eosinophilic Esophagitis
Ben has been having a hard time. Ever since he can remember, his two sisters and his parents eat whatever…
Eternally Gluten-Free – A Cookbook of Sweets and Inspiration, From a Teen!
Eternally Gluten-free is a cookbook full of sweets, from breakfast, to drinks and desserts. The book also includes a short…
Extraordinary! A Book for Children with Rare Diseases
What makes a child with a rare disease extraordinary? Explore the answer to this question while sharing an illustrated conversation…
Extreme Parenting: Parenting Your Child with a Chronic Illness
This book is a guide and a source of support for parents of children with long-term illnesses. The author states…
Forever Hellos, Hard Goodbyes: Inspiration, Wit & Wisdom From Courageous Kids Facing Life-Threatening Illness
When facing a life-challenging or even terminal illness, it’s all about being normal. That’s what kids and teens want for…