Blue Lewis And Sasha The Great

Blue Lewis and Sasha the Great is a story about acceptance, love, hope, and healing. Lewis is born with a heart defect that keeps him from having enough oxygen, turning his nails and lips blue. It is hard for him to play with other kids, until his new puppy, Sasha, helps. This story is for… More Blue Lewis And Sasha The Great

Cardio What? (¿Cardio Què?)

This child-friendly guide helps children understand their own and/or their family member’s diagnosis of cardiomyopathy. It addresses information about inherited forms of cardiomyopathy that cardiologists, genetic counselors or other health professionals may have discussed. Booklet contains basic information, great illustrations, and a list of resources. These books are available here for download. Cardio What?  … More Cardio What? (¿Cardio Què?)

It’s My Heart: The World’s Leading Guide to Congenital Heart Defects for Parents and Patients (Revised Edition)

“It’s My Heart” is a resource guide for patients and families affected by congenital and acquired heart disease. It is intended to provide information on many of the issues families dealing with congential or acquired heart defects encounter. “It’s My Heart” was developed over the past several years by a dedicated group of doctors, nurses… More It’s My Heart: The World’s Leading Guide to Congenital Heart Defects for Parents and Patients (Revised Edition)

Kara Mia: The Story of Sudden Loss and Slow Recovery In a Teenager With Long Qt Syndrome

Kara Mia offers readers a unique perspective on a teenager’s  cardiac arrest, diagnosis of Long QT syndrome and living with its  aftermath. Kara Anglim was fourteen when she suffered a cardiac arrest  while running track. Her life, those of her family and friends, and  doctor were changed as they struggled to cope with this tragic … More Kara Mia: The Story of Sudden Loss and Slow Recovery In a Teenager With Long Qt Syndrome

My Brother Needs An Operation

Book Cover, My Brother Needs An Operation

The story shows how Joey’s life was affected when his little brother Alex went to the hospital to have his operation. A wonderful story which talks about Joey, but also provides a chance for other siblings to talk about their feelings.

Paper Heart

Book Cover, Paper Heart

Sixth grader Nadia begins to defy her “overprotective” Mother, who won’t let her play outside on cold days, or do much of anything in fear of her health. In the process of learning about her heart, Nadia finds the strength to get help for herself and her Mom.

Pump The Bear

Book Cover, Pump The Bear

This is the story of a bear cub named Pump, who has surgery to repair a broken heart just after he is born.

Riley’s Heart Machine

Riley worries about sharing her secret of having a heart defect and a pacemaker with her school friends. She tackles her fear of being different and reveals her secret to her friends in a unique way. Children will learn about accepting others differences and embracing the attributes that make them special. Suggested age range for… More Riley’s Heart Machine

Showing Heart

In the summer of 2008, Henry and Leighann Marquiss are given news that will change their lives forever. The life of their youngest child hangs in the balance with a very slim chance at survival. Torn by grief and disappointment, they struggle to come to grips with their son’s Diagnosis. With his tiny heart beating… More Showing Heart

Starting A Conversation: School Children With Congenital Heart Disease

Book Cover, Starting A Conversation: School Children With Congenital Heart Disease

This book will inspire people to treat children with this situation as children, rather than children with congenital heart disease. This the dream of these children. This book, written specifically for parents, teachers and all school personnel working with these amazing children, provides accessibility to the wealth of knowledge that has been generated by researchers.… More Starting A Conversation: School Children With Congenital Heart Disease

The Heart Of A Child, 2nd Edition

A detailed book for parents on heart defects and diseases in children. They outline how the heart develops in a child and show what can go wrong during the growing process. They also discuss the risk factors for heart defects, explain how heart problems are recognized, and cover treatment options. While the severity of heart… More The Heart Of A Child, 2nd Edition