Coordination problems often make everyday activities a challenge for children with learning disabilities. This accessible manual offers practical strategies and…
Written by a young woman with Crohn’s disease, this book is a source of strength, inspiration, and sound advice for…
When facing a life-challenging or even terminal illness, it’s all about being normal. That’s what kids and teens want for…
Kelly was a seventeen-year-old star of her high school basketball team . . . Gevon was a twelve-year-old who played…
An empathetic and practical guidebook relevant to the families of chronically and severely ill children and to those who care for them. Observes and…
This book provides info on: making the transplant decision, choosing a transplant team, how a match is determined, the transplant…
Included are clear explanations of medical information regarding Postural Orthostatic Tachycardia Syndrome (POTS), evidenced-based research, best practices for clinical diagnoses…
Crohn’s Disease is a chronic and incurable gastrointestinal inflammatory illness of unknown origins. With this book, discover how to maximize…
This book goes through all aspects of Reflex Sympathetic Dystrophy Syndrome (RSD/CRPS) including definition, causes, tips on dealing with healthcare…
Chronic pain in children can manifest as abdominal, migraine, or facial pain. It also stems from a wide variety of…
Profiles the lives of uniquely challenged teens as they work hard to make sense of the world and their places in…
With the heart and understanding of moms who are living it themselves, Elizabeth Hoekstra and Mary Bradford offer encouragement and…
Provides clear-cut and in-depth information on living with the illness. It offers the latest information on preventing complications, research, and…
This video is packed with practical advice on disease education, lifestyle management and emotional support. 12 modules of information, includes…
This video will assist you in the needs for your newly diagnosed child to lead a healthy and gluten-free life. Twelve modules…
Complex regional pain syndrome is rare, but can be very disabling. Early management can help. Written for teens, this book…
An expert team of pediatric gastroenterologists answers many questions: why is my child sick? What can we do to help…
When Jeanne McDermott’s second child, Nathaniel, was born with Apert syndrome – a condition that results in a towering skull,…
Clefting is one of the most common birth defects and one of the most reparable. Yet parents of clefted newborns…
This title features real stories of people with facial differences – people whose faces are disfigured as a result of…
A non-fiction children’s book about cleft lip and palate. This book explores the medical, social and emotional aspects a cleft…
Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily…
What is the experience of a child with a life-threatening illness? It can be so hard for parents, family, and…
An ordinary family is faced with an extraordinary challenge, a child with cystic fibrosis. This is their story, rich and…