This book provides info on: making the transplant decision, choosing a transplant team, how a match is determined, the transplant…
Organ Transplants: Making The Most Of Your Gift Of Life
Book Audiences: Parent
Pots – Together We Stand: Riding the Waves of Dysautonomia
Included are clear explanations of medical information regarding Postural Orthostatic Tachycardia Syndrome (POTS), evidenced-based research, best practices for clinical diagnoses…
Coping With Crohn’s Disease
Crohn’s Disease is a chronic and incurable gastrointestinal inflammatory illness of unknown origins. With this book, discover how to maximize…
RSD In Me! A Patient And Caretaker Guide To Reflex Sympathetic Dystrophy And Other Chronic Pain Conditions
This book goes through all aspects of Reflex Sympathetic Dystrophy Syndrome (RSD/CRPS) including definition, causes, tips on dealing with healthcare…
Relieve Your Child’s Chronic Pain
Chronic pain in children can manifest as abdominal, migraine, or facial pain. It also stems from a wide variety of…
Easy For You To Say: Q & A’s For Teens Living With Chronic Illness Or Disability
Profiles the lives of uniquely challenged teens as they work hard to make sense of the world and their places in…
Chronic Kids Constant Hope: Help And Encouragement For Parents Of Children With Chronic Conditions
With the heart and understanding of moms who are living it themselves, Elizabeth Hoekstra and Mary Bradford offer encouragement and…
Hope And Destiny: The Patient And Parent’s Guide To Sickle Cell Disease And Sickle Cell Trait
Provides clear-cut and in-depth information on living with the illness. It offers the latest information on preventing complications, research, and…
Growing Up With Crohn’s Disease: What Every Family Should Know
This video is packed with practical advice on disease education, lifestyle management and emotional support. 12 modules of information, includes…
Raising Your Celiac Child: Guidelines For A Gluten-Free Life
This video will assist you in the needs for your newly diagnosed child to lead a healthy and gluten-free life. Twelve modules…
Complex Regional Pain Syndrome (CRPS) Explained: For Teenagers, By Teenagers
Complex regional pain syndrome is rare, but can be very disabling. Early management can help. Written for teens, this book…
Your Child With Inflammatory Bowel Disease: A Family Guide for Caregiving
An expert team of pediatric gastroenterologists answers many questions: why is my child sick? What can we do to help…
Babyface, A Story Of Heart And Bones
When Jeanne McDermott’s second child, Nathaniel, was born with Apert syndrome – a condition that results in a towering skull,…
Your Cleft-Affected Child: The Complete Book of Information, Resources, and Hope
Clefting is one of the most common birth defects and one of the most reparable. Yet parents of clefted newborns…
Heroes With A Thousand Faces: True Stories Of People With Facial Deformities and Their Quest for Acceptance
This title features real stories of people with facial differences – people whose faces are disfigured as a result of…
Zoe, A Cool Cleft Kid
A non-fiction children’s book about cleft lip and palate. This book explores the medical, social and emotional aspects a cleft…
The Power Of Two – A Twin Triumph over Cystic Fibrosis
Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily…
Every Breath I Take
What is the experience of a child with a life-threatening illness? It can be so hard for parents, family, and…
The Spirit Of Lo: An Ordinary Family’s Extraordinary Journey
An ordinary family is faced with an extraordinary challenge, a child with cystic fibrosis. This is their story, rich and…
Cystic Fibrosis In The Classroom
Booklet providing overview of CF, and its affects on a child. Information on nutrition, exercise, clearing airways provided. School issues…
Cystic Fibrosis: A Guide For Patient And Family (3rd Edition)
This guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book…
Breathing For A Living: A Memoir
Twenty-one-year-old Laura Rothenberg has always tried to live a normal life–even with lungs that betray her, and a sober awareness…
Tube Feeding And Cystic Fibrosis
Tube feeding can be a healthy decision for individuals with cystic fibrosis. The decision is never easy. This multi-part video…
Kid-Friendly Parenting With Deaf And Hard Of Hearing Children
For the parents of deaf and hard-of-hearing children, this step-by-step guide offers hundreds of ideas and methods that work with…