Every Breath I Take

What is the experience of a child with a life-threatening illness? It can be so hard for parents, family, and friends to understand, because the experience of serious illness is so hard to articulate. With her co-author, Chynna Bracha Levin, Claire describes with precision, honesty, and humor what it’s like to live with a serious illness. The book is a must read for anyone who feels compassion for a child, a relative, or friend going through an intense or even life-threatening illness. Claire explains exactly what it’s like to live as normal a life as possible while taking care of a condition that requires constant treatment and frequent hospitalization.