Keeping Families at the Center of Health Care
Written by a young woman with Cystic Fibrosis, this book chronicles how she lives her life with CF. Through hospitalizations, struggles, Laura’s refusal to let her illness rule her life, even in the face of declining health, is amazing.
Momma bunny explains CF to her young bunny, Cadberry. Cadberry learns why he takes his medicine, uses his vest. Written by a Mom to help explain cf to her young daughter, this is a wonderful story for young children.
Written by a woman who has two sisters with CF, this is a colorful, encouraging book for children, encouraging them to do whatever they want, follow their dreams and not let cf hold them back.
Booklet providing overview of CF, and its affects on a child. Information on nutrition, exercise, clearing airways provided. School issues addressed include how cf can interfere with school, maintaining school to home communication, sample modifications.
Clear information on Cystic Fibrosis – from diagnosis to treatment. Also includes practical advice on exercise, diet, teen and adult years, infection control, testing, diabetes.
With her co-author, Chynna Bracha Levin, Claire describes with precision, honesty, and humor what it’s like to live with a serious illness. The book is a must read for anyone who feels compassion for a child, a relative, or friend going through an intense or even life-threatening illness. Claire explains exactly what it’s like to… More Every Breath I Take
Explaining to friends about Cystic Fibrosis can be very tricky, especially if you are just learning. Join Charlie mouse and Timmy while they build a friendship and Charlie learns about cystic fibrosis.
This coloring book/ journal is designed for children with CF to assist them in understanding their feelings, dealing with their experiences. A facilitator’s guide is included.
Photos of children of all ages, taking their enzymes, using their nebulizers and therapy vests, and at play. General information about cystic fibrosis, presented in a very positive manner.
This is an imaginative book written by a young boy with Cystic Fibrosis. The story talks about some of his fears, and his wishes for the world to be free of illnesses like Cancer, CF and AIDS.
A young girl, home from the hospital with a new scar, is told a story of the “Scardust Fairy” by her father. Written by a woman with Cystic Fibrosis, who has several scars and felt self conscious about them, to help other children feel better about theirs.
Jessie talks about having CF. Appropriate for elementary age…. Includes CF quiz for kids at the end, and ten tips for teachers.
An intimate portrayal of the bond between twin sisters, and their lifelong battle with cystic fibrosis. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and tells how the twins bicultural heritage Japanese and German influenced the way they coped. Multiple film festival awards. Available in DVD format.
An ordinary family is faced with an extraordinary challenge, a child with cystic fibrosis. This is their story, rich and moving, as they laugh and cry and learn and grow. Their love, faith, and commitment to each other carry them through battles with depression, anger, despair, and the ravages of the disease as they join… More The Spirit Of Lo: An Ordinary Family’s Extraordinary Journey
Jennifer Hale was diagnosed in 1974 with Cystic Fibrosis (CF), an incurable genetic disease. At that time, children with CF had a life expectancy of just 15 years. But Jennifer had a special passion for life, and her parents – Donna and Evan Michael Codell – had the determination and fighting spirit to enrich and… More There Are No Alligators in Heaven!: A family’s perspectives on surviving the unrelenting savagery of Cystic Fibrosis
Tube feeding can be a healthy decision for individuals with cystic fibrosis. The decision is never easy. This multi-part video features nutritionists, as well as seven families and patients who have made this decision. NG and G tube set ups are profiled. Available in DVD format.
Lilly has a pretty cool life. This story shows that she has to do a few extra things when she gets up each day to stay healthy, because she also has cystic fibrosis.