Twenty-one-year-old Laura Rothenberg has always tried to live a normal life–even with lungs that betray her, and a sober awareness…
Book Categories: Cystic Fibrosis
Cadberry’s Letters
Momma bunny explains CF to her young bunny, Cadberry. Cadberry learns why he takes his medicine, uses his vest. Written…
Cystic Fibrosis And You
Written by a woman who has two sisters with CF, this is a colorful, encouraging book for children, encouraging them…
Cystic Fibrosis In The Classroom
Booklet providing overview of CF, and its affects on a child. Information on nutrition, exercise, clearing airways provided. School issues…
Cystic Fibrosis: A Guide For Patient And Family (3rd Edition)
This guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book…
Every Breath I Take
What is the experience of a child with a life-threatening illness? It can be so hard for parents, family, and…
How Charlie Mouse Learned About Cystic Fibrosis
Explaining to friends about Cystic Fibrosis can be very tricky, especially if you are just learning. Join Charlie mouse and…
Little Brave Ones: A Photo Tribute To The Little People Who Fight The Battle With Cystic Fibrosis Each and Every Day
Photos of children of all ages, taking their enzymes, using their nebulizers and therapy vests, and at play. General information…
My Heart Is Full Of Wishes
This is an imaginative book written by a young boy with Cystic Fibrosis. The story talks about some of his…
Scardust
A young girl, home from the hospital with a new scar, is told a story of the “Scardust Fairy” by…
Taking Cystic Fibrosis To School
Jessie talks about having CF. Appropriate for elementary age…. Includes CF quiz for kids at the end, and ten tips for teachers.
The Power Of Two – A Twin Triumph over Cystic Fibrosis
Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, Isabel and Anabel endured the daily…
The Spirit Of Lo: An Ordinary Family’s Extraordinary Journey
An ordinary family is faced with an extraordinary challenge, a child with cystic fibrosis. This is their story, rich and…
There Are No Alligators in Heaven!: A family’s perspectives on surviving the unrelenting savagery of Cystic Fibrosis
Jennifer Hale was diagnosed in 1974 with Cystic Fibrosis (CF), an incurable genetic disease. At that time, children with CF…
Tube Feeding And Cystic Fibrosis
Tube feeding can be a healthy decision for individuals with cystic fibrosis. The decision is never easy. This multi-part video…
Wake Up Beautiful Girl!
Lilly has a pretty cool life. This story shows that she has to do a few extra things when she…