This unique book describes the difficulties and challenges of girls and women with Rett Syndrome, and proposes solutions that can…
Understanding Rett Syndrome: A Practical Guide For Parents, Teachers, Therapists
Book Audiences: Parent
Missing Genetic Pieces: Strategies For Living With VCFS: The Chromosome 22q11 Deletion
Sherry Baker-Gomez is the parent of a child with VCFS. Her son, now 25, was finally diagnosed with VCFS at…
Educating Children With Velo-Cardio-Facial Syndrome
Part one is a very thorough overview of the syndrome from both a medical and educational perspective. Part two focuses…
Spelling Love With An X: A Mother, A Son, and The Gene That Binds Them
When her son, J.P., was first diagnosed with fragile X syndrome, Clare Dunsford discovered that she and three of her…
Understanding Genetics: A New England For Patients And Health Professionals
Understanding Genetics: A New England For Patients And Health Professionals Provides an overview of genetics, how genetic diseases are diagnosed,…
Taking Asthma To School
Designed to be read aloud in a child’s classroom. This book helps provide an emotionally safe school environment for children…
Living Well With Mitochondrial Disease – A Handbook for Patients, Parents and Families
This book helps make sense of mitochondrial disease (Mito), an overwhelming and complex group of diagnoses that has grown exponentially…
Growing Up With OI – A Guide for Families and Caregivers
Each chapter has a specific focus, written by a different expert in the field. After an overview of OI, covers…
A Little More Than Perfect – My Life With (and In Spite of) Osteogenesis Imperfecta
Heather’s inspiring true story of living with a disorder that touches every part of her life. The disease makes her…
In The Company of Angels – A Compilation of Stories and Poems on Angleman Syndrome, By Those Who Know It Best
Pam shares her story, and the stories of other parents, of raising a child with Angelman Syndrome. Focuses on the…
It’s A Small World After All – Stories by Those Affected by Turner Syndrome
A collection of many inspirational life stories from girls, women, and their families, affected by Turner Syndrome.
Must You Always Be A Boy? The Children’s Storybook Of Hemophilia
This book was written to help parents begin a discussion about hemophilia with their children. Each story contains a definite message to…
Taking Food Allergies To School
This book provides an explanation of Jeffrey’s food allergies,and how they make him feel, while also pointing out how he…
A Home Of Your Own Guide: A Resource For Housing Educators And Counselors To Assist People with Disabilities
Tips to helping individuals prepare for ownership, develop an action plan , shop for a home, obtain a mortgage, prepare for…
The Parent’s Guide To Food Allergies: Clear And Complete Advice From The Experts on Raising Your Food Allergic Child
Written by a parent, a pyschologist and an allergist, this easy to read book covers allergy testing, diagnosing and treating anaphylaxis,…
How To Manage Your Child’s Life-Threatening Food Allergies: Practical Tips For Everyday Life
Step by step guide – covers practical information, including treating reactions, purchasing & cooking food, making home safe, teaching others…
What’s To Eat? The Milk-Free, Egg-Free, Nut-Free Food Allergy Cookbook
Over 145 recipes for everything from soups to salads to main courses and desserts. Many are easily prepared. Also includes…
Unlocking Potential – College And Other Choices For Learning Disabled People
This book is especially useful to those who plan on a college or technical school education. However, it can also…
Reach For The Moon
Samantha Abeel, 13 years old, is learning disabled and gifted. She does not understand mathematical concepts, but she is an…
Trouble With School: A Family Story About Learning Disabilities
Based on real life experiences this book follows Allison and her mother, as each tells her side of the story. The…
I Wish I Could Fly Like A Bird!
This is the story of Chic L. Dee, a boy bird with learning disabilities, who flip-flops when he tries to…
Mommy, Is This Safe To Eat? A Guide For Preschoolers Allergic To Peanuts And Tree Nuts
Three year old Ricky learns to always ask if a food is safe for him. Includes pictures of unsafe foods and…
Beyond F.A.T. City: A Look Back, A Look Ahead
Frustration, Anxiety, Tension (F.A.T.) are three all-too-familiar feelings for the families of children with learning disabilities. It is the basis…
Dyspraxia In The Early Years
Practical suggestions for nursery and infant classrooms. Demonstrates how failing to move well impedes all aspects of development and how…