Keeping Families at the Center of Health Care
Brandon Magoni is a 17 year old who wrote “All Eyes on Me” during a hospital stay in the Epilepsy Unit of Boston Children’s Hospital. “You have a long time to think while sitting in there with wires glued to your head waiting for a seizure.” The book chronicles his perception as a patient. It’s… More All Eyes On Me: Epilepsy You are not alone
This is a heartwarming story about Becky, told from the point of view of her younger sister, Sarah. When Becky has a seizure at school and is embarrassed, Sarah talks to Becky’s class about epilepsy. Wonderful story for ages 6-10.
Written by adult patients in their own words, detailing the feelings experienced before, during and after a wide variety of seizures and offering valuable insights to lay people and professionals alike. Dr Schachter first provides an overview of epilepsy and different seizure types from a medical perspective, and then presents a diverse collection of seizure… More Brainstorms: Epilepsy In Our Words – Personal Accounts Of Living With Seizures
Meet Ellie – a young girl with epilepsy. Ellie invites readers to learn about epilepsy from her perspective. She introduces us to some friends who help present the varying forms of epilepsy. Ellie and her friends help children to understand the obstacles that they face by telling them what it feels like to have epilepsy,… More Can I Tell You About Epilepsy? A Guide for Friends, Family and Professionals
This concise, accessible handbook for families, friends and carers of children with seizures provides all the information they need to approach seizures from a position of strength. Part 1 discusses types and causes of seizures, and what to do during a seizure. The medical concepts and technical terminology, as well as the available tests and… More Children With Seizures: A Guide For Parents, Teachers, And Other Professionals
The author’s daughter was a member of the first study of the modified Atkins Diet for seizures through Johns Hopkins. The book follows the practical details of the diet, and profiles his daughter’s experience, from over 100 seizures a day and multiple medications, to a life now free of both.
A dog that has Epilepsy saves a baby’s life, and is proudly rewarded. Ages 3-5.
This technical book examines the public health dimensions of epilepsy with a focus on four areas: public health surveillance and data collection; population and public health research; Health policy, healthcare and human services; and education for providers, people with epilepsy and their families, and the public. It contains realistic, feasible and action oriented recommendations from… More Epilepsy Across the Spectrum: Promoting Health and Understanding
Filled with illustrations on almost every page and boasting an attractive and stimulating layout, Epilepsy Explained offers a wealth of crystal clear information on epilepsy, intended for patients, family members, friends, and caregivers. This down-to-earth book is divided into easy-to-digest sections that address such fundamental questions as what epilepsy is, what happens in different types… More Epilepsy Explained: A Book For People Who Want To Know More
From a leading neurologist, experienced nurse practitioner, and registered dietitian comes the complete guide to managing your child’s life with epilepsy. It offers the practical advice and information you need to manage your child’s seizures safely and effectively, understand the latest treatment options, and find hope for a seizure-free future.
This enlightening book presents the firsthand personal accounts of children with seizure disorders and their parents. In their own words, these children and parents vividly describe the experiences of handling the crisis of the initial seizure, adjusting to the diagnosis of epilepsy, coping with seizures, managing medications and side effects, and dealing with health care providers,… More Epilepsy On Our Terms: Stories By Children With Seizures And Their Parents
Patient and Family Guide, 3rd Edition offers a comprehensive and authoritative discussion of epilepsy for the patient. Written by a leading expert in the field, this extensively updated third edition incorporates many comments and suggestions from real patients and their families. This guide will answer commonly asked questions about epilepsy, dispel uncertainties and fears, and… More Epilepsy: Patient And Family Guide (Third Edition)
Teens can lead normal, active lives despite having Epilepsy, and this book shows them how other teens are doing so. Through their stories they offer advice on whether and how to tell friends, dates, teachers, or an employer about the condition. Important teen issues, such as driving, dating, sports, and college are addressed.
Written by two mothers who have children on the Ketogenic diet, Fighting Back with Fat provides essential information to educate parents on every aspect of diet therapy, as well as giving counsel for parents navigating the emotional minefields that often come with attempting Ketogenic diets. Common stress factors such as fear of failure, hyper –… More Fighting Back With Fat – A Parent’s Guide to Battling Epilepsy through the Ketogenic Diet and Modified Atkins Diet
This book provides the tools you need to raise a child with epilepsy, to support his/her social development, provide effective discipline, and negotiate the educational system. Every parent is busy, and parents of children with epilepsy may be even busier than most. This book has been organized with the busy parent in mind. The first… More Growing Up With Epilepsy: A Practical Guide For Parents
Follow eight year old Jamie on her journey from being diagnosed with Benign Rolandic epilepsy at age five. Jamie persevered and overcame her epilepsy and went on to help other children by starting her own non-profit that provides gifts to children in five states.
Elizabeth tells us a true story that begins heart breaking with a touch of humor. She opens up her heart in hopes of helping other people that have felt or feel the same way she did, invisible, to know they are not alone. Hoping that parents will recognize if they have a child feeling as… More Invisible
When an earthquake devastates her school Julia escapes being trapped with her classmates because she is resting in the nurse’s room after an epileptic seizure, so she is able to rescue them.
Written and illustrated by a high school student with epilepsy, “Karen’s Epilepsy” is a story about a girl with complex-partial seizures. When Karen’s family moves to a new city, she wonders if her new classmates will befriend her despite her differences. Karen struggles with her own self-acceptance until something unexpected happens. Written with elementary school… More Karen’s Epilepsy
Written by a family physician and mother of a four-year-old, Keto Kid, provides compassionate advice for parents transitioning to a lifestyle where one extra bite of food can have serious repercussions on a child’s health. This unique book gives readers all the facts about the day-to-day management of the diet, while communicating the emotional struggle… More Keto Kid: Helping Your Child To Succeed On The Ketogenic Diet