Book Audiences: Professional

Sort Order

Pre-Dressing Skills

Book Cover, Pre-Dressing Skills

Skill starters for self-help development. A success learning program for teaching specific dressing & undressing tasks to preschool children, children…

© 1983 Klein, Marsha Dunn Med, Otr
Audience: Parent, Professional

Building The Healing Partnership

An empathetic and practical guidebook relevant to the families of chronically and severely ill children and to those who care for them. Observes and…

© 1992, 1994 Leff, Patricia Taner & Walizer, Elaine H.
Audience: Parent, Professional

Pots – Together We Stand: Riding the Waves of Dysautonomia

Included are clear explanations of medical information regarding Postural Orthostatic Tachycardia Syndrome (POTS), evidenced-based research, best practices for clinical diagnoses…

© 2013 Epstein Rhum, Jodi
Audience: Parent, Professional

Babyface, A Story Of Heart And Bones

Book Cover, Babyface, A Story Of Heart And Bones

When Jeanne McDermott’s second child, Nathaniel, was born with Apert syndrome – a condition that results in a towering skull,…

© 2000 Mcdermott, Jeanne
Audience: Parent, Professional

Every Breath I Take

What is the experience of a child with a life-threatening illness? It can be so hard for parents, family, and…

© 2012 Wineland, Claire With Bracha Levin, Chynna
Audience: Adolescents/Teens, Parent, Professional

Cystic Fibrosis In The Classroom

Booklet providing overview of CF, and its affects on a child. Information on nutrition, exercise, clearing airways provided. School issues…

© 2015 Brascia, Tara, Rn, MSN, CFNP; Flynn, Kathleen
Audience: Parent, Professional

Breathing For A Living: A Memoir

Twenty-one-year-old Laura Rothenberg has always tried to live a normal life–even with lungs that betray her, and a sober awareness…

© 2003 Rothenberg, Laura
Audience: Parent, Professional

Tube Feeding And Cystic Fibrosis

Tube feeding can be a healthy decision for individuals with cystic fibrosis. The decision is never easy. This multi-part video…

© 2010 Audience: Parent, Professional