FACES: The National Craniofacial Association

FACES: The National Craniofacial Association provides resources, a newsletter, information and networking opportunities around craniofacial disorders. They also offer financial support for non-medical expenses to patients traveling to a craniofacial center for treatment. Eligibility is based on financial and medical need. Resources include newsletters, information about craniofacial conditions, and networking opportunities.


myFace, formerly the National Foundation for Facial Reconstruction, was founded to address the all-too-visible plight of those with facial deformity by assuring them access to the comprehensive and highly personalized team care at the Institute of Reconstructive Plastic Surgery (IRPS) at NYU Langone Medical Center.The IRPS provides integrative, highly specialized and personalized team care to all those who request treatment, regardless of the type or severity of the anomaly, the length of treatment, or the family’s ability to afford care. Because so much facial repair is still considered cosmetic, out of pocket costs for reconstruction put an enormous burden on a family. myFace’s Clinic Care program covers the care of the children and young adults from low-income families, many of whom are adolescents with severe conditions that require long-term care.

NHDHHS, Special Medical Services

SMS provides care coordination services; support for child development and neuromotor clinics; nutritional and feeding/swallowing consultation; psychological and physical therapy services. Special Medical Services provides medical and financial services to children with special health care needs (CSHCN). Children with special health care needs are those who have, or are at increased risk for, chronic physical, developmental, behavioral, or emotional conditions, which require health and related services of a type beyond that, required by children generally.

Cleft Palate Foundation

The Cleft Palate Foundation (CPF) is  nonprofit organization whose mission is to enhance the quality of life for individuals affected by cleft lip and palate and other craniofacial birth defects. CPF also has scholarships for students with Craniofacial Anomalies. Selection for the award is based on past academic success, evidence of leadership skills or school/community involvement and strong indications of future academic success. An application and additional information is available on the CPF website.