Keeping Families at the Center of Health Care
This book focuses on eight children who have cancer. The primary purpose is to familiarize readers with the rich variety of ways children talk about having cancer, so that it will be easier for them to talk openly and honestly with children about cancer.
A helpful guide – covering general information about cancer types and treatment options, post treatment quality of life, coping strategies for families.
In this awe-inspiring photographic essay, 25 childhood cancer patients are portrayed as they express through art and words their feelings about the cancers that threatened them. Revisiting the survivors, some of whom are now young adults embarking on careers and starting families, this compassionate tribute to children’s resiliency and determination honors the lives of the… More Angels and Monsters: A Child’s Eye View Of Cancer
his award winning children’s book, illustrated by Nanci Hersh, award winning artist and cancer survivor, is a listen-to/read-aloud book for children. A beautifully illustrated resource that can be used to educate and support any child who is facing the cancer of a loved one. The story, as told through the eyes of a little boy… More Butterfly Kisses and Wishes on Wings – When Someone You Love has Cancer… a Hopeful, Helpful Book for Kids
Provides a detailed explanation of cancer clinical trials- from trial design, to physician and patient participation.
Chemo Girl is the fictional tale of a superhero created by Christina Richmond, who was diagnosed with Rhabdomyosarcoma, a rare type of muscle cancer, when she was in the seventh grade. She was only 12 years old. During her many hospitalizations, she developed the concept of Chemo Girl to help her cope with the chemotherapy… More Chemo Girl: Saving The World One Treatment At A Time
A diagnosis of cancer in a child is scary and confusing for every member of the family. “Chemo, Craziness, and Comfort” provides clear explanations and practical advice for children ages 6-12. Warm and funny illustrations help the child (and parents) make sense of cancer and it’s treatment.
This is the most complete parent guide available, includes detailed and precise medical information about both benign and malignant brain and spinal cord tumors that strike children and adolescents. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, and feelings. Woven… More Childhood Brain & Spinal Cord Tumors – A Guide for Families, Friends & Caregivers (2nd Edition)
This is the book survivors have been waiting for- it covers the medical and emotional late effects of treatment, schedules for follow up care, insurance and employment issues. Very empowering. Resource listing included.
Each year more than 6,000 children and teens in the United States are diagnosed with a solid tumor (e.g., kidney tumor, liver tumor, neuroblastoma, retinoblastoma, or sarcoma). The illnesses and their treatments can have devastating effects on family, friends, schoolmates, and the larger community. This newly updated edition contains essential information families need during this… More Childhood Cancer: A Parent’s Guide to Solid Tumor Cancers (3rd Edition)
Author Nancy Keene provides parents and family members with information on treatment, including stem cell transplants, tailoring drugs dosages to children’s genetic profiles, and new methods for dealing with side effects. It contains practical advice on how to cope with medical procedures, hospitalization, school, family, and financial issues, and suggestions on ways to form a… More Childhood Leukemia: A Guide for Families, Friends and Caregivers (4th Edition)
Overview of the disease, causes, risk factors, treatment options, and social and emotional aspects. Further reading suggestions included.
This book reveals what parents can do to alleviate their child’s pain on a daily basis. Based on more than 30 years study, Dr. Zeltzer offers ways to take control of the pain and ultimately become pain-free. She explains how to tell if the pain has become chronic, soothe the nervous system, reactivate the body’s… More Conquering Your Child’s Chronic Pain: A Pediatrician’s Guide for Reclaiming a Normal Childhood
In 1979, Alice Trillin, who three years earlier had been diagnosed with a malignant lung tumor, received a call from good friend Annie Navasky telling her that Annie’s 12-year-old son, Bruno, also had cancer. Alice’s response was a letter to Bruno in which she tried to show that it was possible to talk about cancer… More Dear Bruno
Thirteen-year-old Steven has a totally normal life: he plays drums in the All-Star Jazz band, has a crush on the hottest girl in the school, and is constantly annoyed by his five-year-old brother, Jeffrey. But when Jeffrey is diagnosed with leukemia, Steven’s world is turned upside down. He is forced to deal with his brother’s… More Drums, Girls & Dangerous Pie
Gives overview of brain and spinal cord, pediatric brain tumors, discusses hospitalization & treatment, educational issues, support and resources.
Written as an encouragement to children with cancer by a little boy who had cancer.
Sam’s new friend Lily is being treated for cancer. When Lily goes back to the hospital , Sam has to celebrate her birthday alone. A touching story.
Henry the Hedgehog has to bravely face going to see the white wolf for treatment, staying away from home, and losing his quills. Nice story of his journey back to being well.
Part story, part journal, Jamie’s Journey: Cancer from the Voice of a Sibling helps siblings of pediatric cancer patients cope with those intense feelings. The first half of the book is about 13-year-old Jamie who describes the roller coaster of emotions she experiences when her 10-year-old sister, Jordan, is diagnosed with cancer. Jamie laments the… More Jamie’s Journey: Cancer from the Voice of a Sibling