NeuroJourney uses four phases of a full life to help you understand the challenges you might face, anticipate the conversations you may have, and prepare for the decisions you may need to make as you determine goals of care for your child.
Follow along as you learn to adapt to a diagnosis, begin to build core skills and establish a baseline, adjust to the illness progression, and navigate the medical and emotional considerations as your child’s condition declines.
During your child’s life, you may find yourself moving back and forth between phases, straddling two, or even skipping a phase. Ultimately, regardless of its length, your child’s life will have a full arc enabled by much care and abiding love.
Link: NeuroJourney