What is FOP? Questions and Answers for the Children

What is FOP?

“FOP stands for fibrodysplasia ossificans progressiva, which is a very complicated name to remember. FOP is a disease that causes extra bones to grow in your body. FOP bones are regular bones. They’re just in the wrong places. They grow in your muscles, like in your back, shoulders, arms, and legs. They also grow in “connective tissue,” which connects your muscles to your bones. The FOP bones make it hard to move. You could say that your body is growing another skeleton, an FOP skeleton, along with the regular skeleton you were born with”. This is the beginning page of this e-book, with writings and illustrations by children with FOP and their siblings. Recommended for ages 7 to 14 and younger children with adult supervision.

Format: PDF