Schuyler’s Monster: A Father’s Journey with His Wordless Daughter

When Schuyler was eighteen months old, a question about her lack of speech set in motion a journey that continues today. When she was diagnosed with bilateral Perisylvian Polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again. They then took on educators and society to give their beautiful daughter a voice, and in the process learned a thing or two about fearlessness, tenacity, and joy.

© 2008 Robert Rummel-Hudson
Audience: Parent, Professional