Teachers and parents use GEMSS to better understand the needs of students who have genetic conditions. If you support a child… More GEMSS – Genetics Educational Materials for School Success
Resource Categories: Genetic Disorder Organizations
New England Regional Genetics Network (NERGN)
The mission of the New England Regional Genetics Network (NERGN) is to promote and improve health and social well-being of… More New England Regional Genetics Network (NERGN)
Genetic Alliance
This network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and… More Genetic Alliance
Autoinflammatory Alliance
The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved… More Autoinflammatory Alliance
Genes in Life
Genes in Life is a place to learn about all the ways genetics is a part of your life. On… More Genes in Life
The National Organization for Albinism and Hypopigmentation – NOAH
NOAH is a organization that offers information and support to people with albinism, their families and the professionals who work with them.
Little People of America – New England Region
New England District 1 covers the local LPA chapters in the Northeast part of the U.S. which includes Maine, New Hampshire,… More Little People of America – New England Region
Little People of America
Little People of America, Inc., is a national non-profit organization that provides support and information to people of short stature… More Little People of America
New England Hemophilia Association
The New England Hemophilia Association offers educational materials, financial programs, and activities for all ages throughout the year. Family Camp:… More New England Hemophilia Association
National Organization for Rare Disorders (NORD)
NORD has a dedicated staff of information specialists to answer your questions about patient resources, clinical trials and more. NORD’s… More National Organization for Rare Disorders (NORD)