NOAH is a organization that offers information and support to people with albinism, their families and the professionals who work with them.
New England District 1 covers the local LPA chapters in the Northeast part of the U.S. which includes Maine, New Hampshire, Vermont, Massachusetts, Rhode Island and Connecticut and provides support and information to people of short stature and their families. Runs Camp CAYA – Camp Come as You Are is a weekend camp experience for New England families with dwarf children, teens, siblings and parents of all sizes. Our host is Camp Allen in Bedford, NH.
Little People of America, Inc., is a national non-profit organization that provides support and information to people of short stature and their families. LPA offers information on employment, education, disability rights, adoption, medical issues, clothing, adaptive products, and the many stages of parenting a short-statured child – from birth to adult. Information is provided through a national newsletter, the LPA Today, and numerous seminars and workshops which occur locally at chapter events, regionally at District Meetings, and nationally at our yearly national conference.
The New England Hemophilia Association offers educational materials, financial programs, and activities for all ages throughout the year. Family Camp: NEHA’s Hemophilia Family Camp (4 day camping experience for NEHA families and children ages 6 month to 15 years old) is held each year at Geneva Point Conference Center in Moultonborough, NH, up on Lake Winnipesaukee. NEHA offers a Junior Counselor program each summer during our Family Camp at Geneva Point in Moultonborough, NH. This program is focused on youths 16-17 years of age. Attendees do not need to have a bleeding disorder to attend, but they must have some one in their family who does.
NORD has a dedicated staff of information specialists to answer your questions about patient resources, clinical trials and more. NORD’s Rare Disease Database provides reports in patient-friendly language about more than 1,200 rare diseases.
The Angelman Syndrome Foundation’s mission is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families.
NOAH is a U.S. based nonprofit, tax-exempt organization that offers information and support to people with albinism, their families and the professionals who work with them.