Family Information Guide to Assistive Technology and Transition Planning

Assist guide

The FCTD Family Information Guide to Assistive Technology and Transition Planning includes sections on,  Transition Planning and Assistive Technology; How Make a Successful Transition with Your Assistive Technology; Laws Governing Accommodations and Transition in Birth-12 and Postsecondary Settings and a Glossary of AT and Transition Terms.

Parents Partnering with Managed Care Plans

parents partner

Families and health care professionals are important partners in providing care for Children and Youth with Special Health Care Needs (CYSHCN). Successful partnerships are based on shared knowledge and trust, and so a first step in building this partnership between families and managed care plans is to engage in meaningful discussions about CYSHCN. The following was developed by Family Voices parent leaders to help focus these discussions on programs, and policies and resources. Through dialogue, and then through collaboration, families and managed care plans can work together to improve services for children and youth with special health care needs.

What Families Want From Primary Care

NAMI Primary carePrimary care providers are often the first point of contact for families when it comes to the health and well-being of their child. They are in a key position to identify potential mental health concerns early and to communicate these concerns with families. Open communication with families helps to reduce the pain and isolation often experienced by youth living with mental illness and their families.

Leaflet on Genetic Tests for Health Purposes

geneticThe Council of Europe has developed the ‘Leaflet on Genetic Tests for Health Purposes’ which aims at providing general objective information on genetic tests, including their nature and the potential implications of their results. It presents the different types of tests available, their applications in the medical field and the extent and limit of the significance of the information resulting from these tests. Attached is the leaflet in English. The leaflet has been translated into the following languages:  Albanian, Armenian, Croatian, Czech, Dutch, Estonian, Finnish, French, German, Greek, Hungarian, Icelandic, Polish, Portuguese, Romanian, Slovak, Slovenian, and Spanish. They can be found the Council of Europe  website.

A Youth Guide to Wraparound Services – Your Life, Your Future

youth MH ColorWrap-a-what? Someone cares about your life and future. That’s why you’ve been recommended for Wraparound. Funny name for a process that has one goal: supporting you in making positive life choices. This guide will help a young person understand the process and the importance of their role.

Powerful Partnerships: A Handbook for Families and Providers Working Together to Improve Care

Tpowerfulhis guide is intended to help both family members and healthcare professionals who are working together to improve care for children with special healthcare needs. Joining together in multi-disciplinary teams, family members and providers are increasingly working as equal partners to improve care. Collaborating as equals may be new for family members and providers. This guide includes information and guidance on how to get the most out of this potentially powerful partnership.

This is a publication of the National Initiative for Children’s Healthcare Quality (NICHQ) who seek to improve children’s health by improving the systems responsible for the delivery of children’s healthcare. For more information about NICHQ, please visit