The FCTD Family Information Guide to Assistive Technology and Transition Planning includes sections on, Transition Planning and Assistive Technology; How Make a Successful Transition with Your Assistive Technology; Laws Governing Accommodations and Transition in Birth-12 and Postsecondary Settings and a Glossary of AT and Transition Terms.
Families and health care professionals are important partners in providing care for Children and Youth with Special Health Care Needs (CYSHCN). Successful partnerships are based on shared knowledge and trust, and so a first step in building this partnership between families and managed care plans is to engage in meaningful discussions about CYSHCN. The following… More Parents Partnering with Managed Care Plans
Primary care providers are often the first point of contact for families when it comes to the health and well-being of their child. They are in a key position to identify potential mental health concerns early and to communicate these concerns with families. Open communication with families helps to reduce the pain and isolation often… More What Families Want From Primary Care
The Council of Europe has developed the ‘Leaflet on Genetic Tests for Health Purposes’ which aims at providing general objective information on genetic tests, including their nature and the potential implications of their results. It presents the different types of tests available, their applications in the medical field and the extent and limit of the… More Leaflet on Genetic Tests for Health Purposes
Wrap-a-what? Someone cares about your life and future. That’s why you’ve been recommended for Wraparound. Funny name for a process that has one goal: supporting you in making positive life choices. This guide will help a young person understand the process and the importance of their role.
This guide is intended to help both family members and healthcare professionals who are working together to improve care for children with special healthcare needs. Joining together in multi-disciplinary teams, family members and providers are increasingly working as equal partners to improve care. Collaborating as equals may be new for family members and providers. This… More Powerful Partnerships: A Handbook for Families and Providers Working Together to Improve Care