Caring for Children Who Have Severe Neurological Impairment: A Life with Grace

In this book, Dr. Hauer provides information to help parents increase their knowledge and improve their caregiving skills for children having a severe neurological impairment. Framing by symptoms, not diseases, Dr. Hauer gives practical diagnostic and therapeutic approaches to the most challenging problems faced by children with severe neurological impairment. She advocates shared decision making between family caregivers and healthcare providers and details aspects of medical care such as pain, sleep, feeding, and respiratory problems. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent.