Keeping Families at the Center of Health Care
Abby is a ten-year old girl who has juvenile arthritis and chronic recurrent multifocal osteomyelitis. From taking medicine to routine doctor appointments, Abby shares how her life is affected by arthritis. From good days to bad days, Abby lets other kids know that they are not alone in this diagnosis.
This book has been written jointly by nine–year-old Bethany and her mum Julie. It highlights the devastating effect that Juvenile Idiopathic Arthritis had on Bethany’s life. In all, 26 of her joints were affected-from the jaw to the ankle. After a traumatic first year Julie could take no more of Bethany’s plight when given the… More Behind My Smile
This book reveals what parents can do to alleviate their child’s pain on a daily basis. Based on more than 30 years study, Dr. Zeltzer offers ways to take control of the pain and ultimately become pain-free. She explains how to tell if the pain has become chronic, soothe the nervous system, reactivate the body’s… More Conquering Your Child’s Chronic Pain: A Pediatrician’s Guide for Reclaiming a Normal Childhood
Clear explanation of JRA, including symptoms, diagnosis, treatment. Tips for coping at home and at school. Lots of quotes directly from children, teens.
Twelve year old Regan must face the possibility that her dream of becoming a professional dancer may not come true when she is diagnosed with Juvenile Rheumatoid Arthritis.
Here is a readable, reliable guide to the common causes of bone, joint, muscle, and arthritis pain in children, designed to help parents and physicians understand these disorders, arrive at the proper diagnosis, and choose the most effective treatment. In this comprehensive resource, Dr. Thomas Lehman–the head of one of the most prestigious pediatric rheumatology… More It’s Not Just Growing Pains: A Guide To Childhood Muscle, Bone, And Joint Pain, Rhematic Diseases, and the Latest Treatments
Emersyn Shragie is a 5-year-old girl who lives with her parents, sister Averie, brother Austin and dog Patches. Emmy enjoys swimming, singing, dancing and most importantly being silly. Emmy loves play dates with friends, spending time with her grandparents and playing with her cousins. She is a true warrior when it comes to Systemic Idiopathic… More Just For You: Emersyn’s Story: A Book About Juvenile Arthritis
Jennifer is diagnosed with JRA, and initially keeps it a secret from her friends. In this story we learn how she manages her pain and adjusts her activities, as well as how she finally tells her friends.
This guide provides support to parents and caregivers of children with juvenile arthritis through helpful tips and guidance from a parent who has successfully navigated the challenges of raising two children with juvenile idiopathic arthritis. Learn more about arthritis, its symptoms, diagnosis scenarios, treatment options, managing pain, and handling flare-ups. Discover strategies for dealing with… More Living with Juvenile Arthritis: A Parent’s Guide
Aimed at dispelling some of the myths of JRA, this book provides general information, colorful photos, and tips on managing symptoms.
Julie is 11 years old, and has JRA. This book is told through Julie’s letters to her pen pal. The insights into her feelings about having JRA, taking chances, and putting up with a younger brother, make this a wonderful book for children ages 9-12.
Eight year old Peter, who has JRA, and Dalton, who has Cerebral Palsy, attend camp for the first time. Both are a bit afraid of new things, but find that with new friends cheering them on, that camp is really fun.
Cuts through the medical jargon and answers the questions parents need answered. Practical tips on giving shots, coping with flares, managing daily living without pain, helping child to cope with other kids, and school.
Chronic pain in children can manifest as abdominal, migraine, or facial pain. It also stems from a wide variety of disorders such as juvenile rheumatoid arthritis, cystic fibrosis, hemophilia, and childhood cancers. No matter what type of chronic pain the child suffers with, a parent must be armed with an understanding of how a child’s… More Relieve Your Child’s Chronic Pain
Eric talks about how he was diagnosed with and manages his arthritis in this colorful and simple story. Very positive. Includes tips for teachers and additional resources . Story designed for ages 5-10.