Kathy Hunter is not only the author but founded the International Rett Syndrome Association (IRSA) in 1984 with friends and…
The Rett Syndrome Handbook (2nd Edition)
Book Audiences: Professional
The Source For Syndromes 2
The Source for Syndromes describes a variety of syndromes including CHARGE, Pierre-Robin, Treacher Collins, Velocardiofacial, and several more. Offers a…
Dandy Kids
Families share their life experiences about children diagnosed with Dandy Walker Syndrome. The movie depicts the experts, advocates, and the…
Understanding Rett Syndrome: A Practical Guide For Parents, Teachers, Therapists
This unique book describes the difficulties and challenges of girls and women with Rett Syndrome, and proposes solutions that can…
Missing Genetic Pieces: Strategies For Living With VCFS: The Chromosome 22q11 Deletion
Sherry Baker-Gomez is the parent of a child with VCFS. Her son, now 25, was finally diagnosed with VCFS at…
Educating Children With Velo-Cardio-Facial Syndrome
Part one is a very thorough overview of the syndrome from both a medical and educational perspective. Part two focuses…
Spelling Love With An X: A Mother, A Son, and The Gene That Binds Them
When her son, J.P., was first diagnosed with fragile X syndrome, Clare Dunsford discovered that she and three of her…
Understanding Genetics: A New England For Patients And Health Professionals
Understanding Genetics: A New England For Patients And Health Professionals Provides an overview of genetics, how genetic diseases are diagnosed,…
Taking Asthma To School
Designed to be read aloud in a child’s classroom. This book helps provide an emotionally safe school environment for children…
Living Well With Mitochondrial Disease – A Handbook for Patients, Parents and Families
This book helps make sense of mitochondrial disease (Mito), an overwhelming and complex group of diagnoses that has grown exponentially…
Growing Up With OI – A Guide for Families and Caregivers
Each chapter has a specific focus, written by a different expert in the field. After an overview of OI, covers…
A Little More Than Perfect – My Life With (and In Spite of) Osteogenesis Imperfecta
Heather’s inspiring true story of living with a disorder that touches every part of her life. The disease makes her…
It’s A Small World After All – Stories by Those Affected by Turner Syndrome
A collection of many inspirational life stories from girls, women, and their families, affected by Turner Syndrome.
Taking Food Allergies To School
This book provides an explanation of Jeffrey’s food allergies,and how they make him feel, while also pointing out how he…
A Home Of Your Own Guide: A Resource For Housing Educators And Counselors To Assist People with Disabilities
Tips to helping individuals prepare for ownership, develop an action plan , shop for a home, obtain a mortgage, prepare for…
How To Manage Your Child’s Life-Threatening Food Allergies: Practical Tips For Everyday Life
Step by step guide – covers practical information, including treating reactions, purchasing & cooking food, making home safe, teaching others…
What’s To Eat? The Milk-Free, Egg-Free, Nut-Free Food Allergy Cookbook
Over 145 recipes for everything from soups to salads to main courses and desserts. Many are easily prepared. Also includes…
Unlocking Potential – College And Other Choices For Learning Disabled People
This book is especially useful to those who plan on a college or technical school education. However, it can also…
Reach For The Moon
Samantha Abeel, 13 years old, is learning disabled and gifted. She does not understand mathematical concepts, but she is an…
Beyond F.A.T. City: A Look Back, A Look Ahead
Frustration, Anxiety, Tension (F.A.T.) are three all-too-familiar feelings for the families of children with learning disabilities. It is the basis…
Dyspraxia In The Early Years
Practical suggestions for nursery and infant classrooms. Demonstrates how failing to move well impedes all aspects of development and how…
The Source For Learning Disabilities
This book gives an overview of learning disabilities, addresses the social and emotional aspects, communication issues, Dyslexia, Dysgraphia, Dyscalculia, ADD and…
The Source For Nonverbal Learning Disabilities
This book addresses the needs of individuals of all ages with NLD. It identifies the common characteristics, early adjustment problems,…
Dysgraphia: Why Johnny Can’t Write: A Handbook For Teachers And Parents
This book provides lots of practical suggestions on how to maintain the self-esteem of children who struggle with writing. Suggestions…