The community-based program is BBBS’s “traditional” mentoring program, where Bigs and Littles are matched in a one-to-one friendship based on…
Age Group: Ages 14-26
The International 22q11.2 Foundation
The International 22q11.2 Foundation is a nonprofit organization dedicated to supporting the needs of families and individuals affected by chromosome…
The 22q and You Center
The 22q and You Center at Children’s Hospital of Philadelphia is an internationally recognized leader in the diagnosis and treatment…
Aaron’s Tracheostomy Page
Aaron’s Tracheostomy Page is written by a parent, Cynthia Bissell, RN, to help assure the highest quality home care for…
AbilityPlus – Attitash Mountain Resort
Founded in 1997, AbilityPLUS is a 501(c)(3) non-profit organization dedicated to enriching the lives of program participants, their families, friends…
FSHD Society
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. Typically beginning in…
Parent Project Muscular Dystrophy
A nonprofit organization focusing on Duchenne muscular dystrophy. PPMD funds research, raises awareness, promotes advocacy, connects the community, and broadens…
Special Education Advocacy Services of NH, LLC
Provides special education advocacy services to parents and caregivers of children with disabilities. Our core is rooted in an unwavering…
Moebius Syndrome Foundation
The Moebius Syndrome Foundation’s mission is to provide information and support to individuals with Moebius syndrome and their families, promote…
National Seating and Mobility
National Seating and Mobility offers complete mobility solutions. That may mean customizing a power wheelchair to maximize your comfort and…
Special Education Advocate, Educational Consultant, Reading and Writing Tutor
Lorie Ball, M.Ed is a Special Education Advocate, Educational Consultant, and Reading and Writing Tutor dedicated to meeting the needs…
Special Education Advocate & Consultant
Lorie Ball – Special Education Advocate & Educational Consultant dedicated to meeting the educational needs of children and adults in…
Swim Angelfish – Adaptive Swim Program
Angelfish Therapy provides aquatic therapy with licensed Physical and Occupational Therapists. They are specially trained on working in the water…
CLOVES Syndrome Community
CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome. The CLOVES Syndrome Community…
Neurofibromatosis (NF) The Littlest Tumor Foundation
This genetic disorder has three forms: NF1, NF2, and Schwannomatosis. NF1 affects 1 in 3,000 births and causes tumors to…
Northeast Rehabilitation Driving Assessment Program
Northeast Rehabilitation Hospital Network offers a comprehensive driving assessment program for anyone who has had an illness, injury, or age-related…
Cornelia de Lange Syndrome (CdLS) Foundation
The CdLS Foundation provides a host of services that educate and unite families touched by this little-known genetic syndrome.
Small Steps in Speech
Small Steps in Speech assists children with speech and language disorders by funding supplemental therapies and treatments for individuals. It…
GEMSS – Genetics Educational Materials for School Success
Teachers and parents use GEMSS to better understand the needs of students who have genetic conditions. If you support a child…
Genetic Alliance
This network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and…
Autoinflammatory Alliance
The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved…
The Leukemia & Lymphoma Society (LLS)
The Leukemia & Lymphoma Society (LLS) is committed to providing information, resources and support to those affected by blood cancers….
The Smile Train
Smile Train is the world’s largest cleft-focused organization, with a sustainable and local model of supporting surgery and other forms…
Seacoast Play Works Therapy
Seacoast Play Works Therapy provides occupational therapy services for infants through school-aged children in their own homes throughout the Seacoast area…