Neurofibromatosis (NF) The Littlest Tumor Foundation

This genetic disorder has three forms: NF1, NF2, and Schwannomatosis. NF1 affects 1 in 3,000 births and causes tumors to… More Neurofibromatosis (NF) The Littlest Tumor Foundation

Rare New England

Rare New England’s mission is to bring together New England patients, families and providers touched by rare and complex disorders.… More Rare New England

Cornelia de Lange Syndrome (CdLS) Foundation

The CdLS Foundation provides a host of services that educate and unite families touched by this little-known genetic syndrome.

GEMSS – Genetics Educational Materials for School Success

Teachers and parents use GEMSS to better understand the needs of students who have genetic conditions. If you support a child… More GEMSS – Genetics Educational Materials for School Success

New England Regional Genetics Network (NERGN)

The mission of the New England Regional Genetics Network (NERGN) is to promote and improve health and social well-being of… More New England Regional Genetics Network (NERGN)

Genetic Alliance

This network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and… More Genetic Alliance

Autoinflammatory Alliance

The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved… More Autoinflammatory Alliance

Genes in Life

Genes in Life is a place to learn about all the ways genetics is a part of your life. On… More Genes in Life

The National Organization for Albinism and Hypopigmentation – NOAH

NOAH is a  organization that offers information and support to people with albinism, their families and the professionals who work with them.

Little People of America – New England Region

New England District 1  covers the local LPA chapters in the Northeast part of the U.S. which includes Maine, New Hampshire,… More Little People of America – New England Region