Cornelia de Lange Syndrome (CdLS) Foundation

The CdLS Foundation provides a host of services that educate and unite families touched by this little-known genetic syndrome.

GEMSS – Genetics Educational Materials for School Success

Teachers and parents use GEMSS to better understand the needs of students who have genetic conditions. If you support a child… More GEMSS – Genetics Educational Materials for School Success

New England Regional Genetics Group (NERGG)

The New England Genetics Collaborative (NEGC) is one of seven regional organizations across the United States dedicated to narrowing the… More New England Regional Genetics Group (NERGG)

Genetic Alliance

This network includes more than 1,200 disease-specific advocacy organizations, as well as thousands of universities, private companies, government agencies, and… More Genetic Alliance

Autoinflammatory Alliance

The Autoinflammatory Alliance is a 501 (c)(3) non-profit public charity dedicated to promoting awareness, proper diagnosis and treatment, and improved… More Autoinflammatory Alliance

Genes in Life

Genes in Life is a place to learn about all the ways genetics is a part of your life. On… More Genes in Life

The National Organization for Albinism and Hypopigmentation – NOAH

NOAH is a  organization that offers information and support to people with albinism, their families and the professionals who work with them.

Little People of America – New England Region

New England District 1  covers the local LPA chapters in the Northeast part of the U.S. which includes Maine, New Hampshire,… More Little People of America – New England Region

Little People of America

Little People of America, Inc., is a national non-profit organization that provides support and information to people of short stature… More Little People of America

New England Hemophilia Association

The New England Hemophilia Association offers educational materials, financial programs, and activities for all ages throughout the year. Family Camp:… More New England Hemophilia Association