Epilepsy Resources To Support School Health and Other Community Providers

Communication Tools:
The use of tools to promote better communication and provide accurate information to insure the safety and inclusion of children and youth with epilepsy has been a major focus of the work in this project.

Seizure Action Plan – provides an overview of a child’s seizures, list medications and identifies how to provide assistance in the case of a seizure. Since each child is unique, the information is tailored to meet the unique needs of the child.

 

Seizure Description Tool –  is used to identify what occurred during an event. Having this level of detail helps families to note the stability or mark changes in their child’s seizure profile and to communicate this to physicians.(other languages found on Parent Resource page)

 

 

Seizure Observation ToolSeizure Observation Tool

 

 

 

 

Questionnaire for Parent of Student with Epilepsy

 

 

 

 

Medication Administration: The administration of medication, particularly emergency medications, has been a frequent topic of discussion, raised by parents and providers alike. The following resources have been developed and / or identified to answer questions and concerns.

Do you need to train other staff within school or child care?  NH Family Voices has training mannequins and kit utilized in the medication administration videos available for use by school nurses in NH. If you would like to borrow them, please contact Sylvia Pelletier at (603) 271-4525.

Diastat Administration

 

 

 

 

Midazolam Administration

 

Susan Gaelic, RN, from Dartmouth-Hitchcock Pediatric Neurology, demonstrates the administration of intranasal midazolam.

                       

 

Rescue Medication and Seizure Emergency Planning in Education Settings – Learn about seizure emergency and school action plans, medications and considerations, IEP and 504 plans, and community resources to help parents with medical care in their child’s school. Sarah Doerrer, Certified Pediatric Nurse Practitioner from The Johns Hopkins Hospital Department of Neurology, discusses seizure emergencies and seizure action plans, including an overview of medications and considerations.

NOTE: Under the Nurse Practice Act in NH, administration of emergency medications for students with epilepsy (most often Diastat and Midazolam), can be delegated to unlicensed personnel, if appropriate for that student. Refer to the video presentation featuring Tracey Collins, DNP, RN, CNRN, NEA, “What is Delegation? How Can It Be Used?” for additional information.

 

COVER TO NHSNA STANDARDSStandards of Delegation – A Guide for New Hampshire School Nurses The New Hampshire School Nurses Association has prepared this guide as the standard of nursing practice in the school setting.

 

 

 

Medications During School Day, NH Department of Education: This technical advisory is intended to help clarify issues related to delegation of medications during the school day.

 

 

 

 

Additional Resources:

Epilepsy Foundation

Teaching Students With Epilepsy: Strategies for Educators – This resource provides strategies for educators to teach children with epilepsy and learning problems as a result of their seizures.

A Guide for Teachers: Epilepsy – This resource was developed in Canada. However, the content is good and gives an overview of epilepsy, seizures, the effects on learning and how teachers can help.

 

 

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