NH Family Voices and the Parent Information Center are offering these Zoom chats… click on the registration link and we will e-mail you a conformation and Zoom address.
Monday, May 18th 3:30 – 4:30 pm
Ready… Set.. Breathe!
Adjusting to the “new normal” of COVID 19 can be difficult, especially when caring for a family member with a disability and or special healthcare needs. How do you find time for self-care and ensure you are putting your oxygen mask on first? Join a conversation to share your challenges and get ideas and resources to find your oxygen mask. Facilitated by Jenn at NHFV – recently appointed remote teacher, mask deliverer, and zoom/google meet expert.
“Supporting your child with special health care needs during COVID-19”
Families that include a child with special health care needs face different challenges during this strange time we find ourselves in. Are you worried about what COVID-19 might mean for your child’s health? Are you seeing increased levels of stress or changes in behavior? Join our Zoom chat to discuss your concerns with Dr. Jan McGonagle, a developmental pediatrician with a focus on children and youth with special health care needs.
Teens and young adults crave socialization! Do you have questions about how you (or your teen/youth) with a disability and or chronic illness can stay safe AND socialize during these new times of social distancing? Are you worried about what COVID-19 looks like in a young person? Want to talk about some creative ways to live during the current state of affairs? Or do you have other concerns? Join our Zoom chat to have a discussion about these concerns with Dr. Lisa Plotnick (specializing in pediatrics and internal medicine) and Cate, a YEAH council member.
In the last month many free downloadable books for children and families on aspects of COVID-19 have been circulating on the web and social media. NH Family Voices has collected and compiled this listing for your easy access.
Coronavirus a Book for Children -This informative and accessible guide for young readers defines the coronavirus, explains why everyday routines have been disrupted, and lays out how everyone can do their part to help. With child-appropriate answers and explanations, the book addresses several key questions. The age range is recommended for children 6-years-old and above.
My Hero is You, Storybook for Children on COVID-19 – Features a creature named Ario, who helps explain how children can protect against the virus and cope with the complicated emotions around the world dealing with a pandemic, according to a release from the Inter-Agency Standing Committee (IASC), which is part of the United Nations Office for the Coordination of Humanitarian Affairs. This book is available in 29 languages Click here to access.
Right now I am fine – This book is for anyone affected by worries, fears, discomfort, or nagging thoughts about the Coronavirus (Covid-19). This is a scary time in the world, full of uncertainty and changes. But the good news is, there are things that we can do to take good care of ourselves. This book explains what you can do to keep your mind and body calm now and during any hard time.
Join Captain Corona as he takes a group of children on an adventure through the community introducing them to a team of 19 brave warriors whose selfless efforts keep us alive. Captain Corona celebrates health care workers, custodians, journalists, store clerks, teachers, scientists, and more.
HELLO This short book was created to support and reassure children, under the age of 7, regarding the COVID-19. It will invite children to express how they are feeling and validate their emotions, comfort them by explaining that caregivers will keep them safe and introduce some precaution measures that will allow them to feel empowered. This book is available in 25 different languages Click here to access.
NABU created the COVID-19 Health collection with the support of experts in the field of health, neuroscience and child development, and a team of authors who pitched in to create information-rich, compelling stories. Translations are available click here to access.
The Virus-Stopping Champion is one of four stories from the collection aiming to help address the confusion and misinformation of COVID-19. Featuring a child superhero who learns how to prevent the spread of the virus, the story touches on the courageous steps every child and their family can take to fight COVID 19. From handwashing, social distancing and the importance of staying home The Virus-Stopping Champion can be enjoyed by children of all ages.
I Love You helps children cope with the emotional impact of not being able to visit their elderly relatives.Touching on the the global nature of the COVID-19 it helps kids understand that this situation is affecting children all over the world no matter their age, skin colour or the language that they speak. As children and families around the world struggle to stop the spread of COVID-19, NABU hopes the power of these diverse storybooks will share vital information that could save lives.
Coronavirus What is it? A story for children to give them information about Coronavirus. It explains what it is, how it is spread, how to protect ourselves and what quarantine is.
Even Astronauts Practice Social Distancing – This is a story meant to answer children’s questions about the Coronavirus. It teaches children about how to practice social distancing, wear masks, and answers questions about how long we will need to stay at home.
Wearing A Mask – A social narrative for children. This story is for children who may need to wear a mask in public due to COVID-19. It is important to prepare children for big changes in these unprecedented day. In Spanish
Putting A Mask on My Toys -This story is for young children. It can help familiarize them with masks during this time of COVID-19 with a little story about putting a mask on stuffed animals, dolls and toys and playing peek-a-boo with them. It also talks about playing peek-a-boo with family members with a mask. In addition, there is a teddy bear, bunny, doll and car that can be cut out along with a mask to cut out and put on those “toys”. There are 5 coloring pages with pictures/scenes with masks being worn.
“Learn About the Coronavirus,” a coloring book created by St. Jude to help the hospital’s patients and children in general understand the virus and its associated health problems.
Because our staff are all parents of children/young adults with special healthcare needs we are working from home and supporting families and professionals through e-mail and social media and telephone support. We are checking our messages multiple times during the day. Book and materials request will be delayed until ‘stay at home’ has been lifted. Thank-you for your patience as we join you and others in keeping all safe.
Visual supports like picture-based booklets help children and those with disabilities manage new or unfamiliar experiences. The Children’s National Hospital’s Center for Autism Spectrum Disorders, Pediatric Health Network and Beyond the Spectrum program have put together this story to help children understand some of the changes we have made in our daily lives due to COVID-19.
In this podcast released by The YEAH Council (Youth for Education Advocacy and Healthcare) young people discuss something others may not understand, what it’s like to have a disability or special healthcare need while trying to live life as a youth. In this episode, YEAH members Emma Parcells, 16 at the time of recording, living with CRPS, Pots and other diagnoses and Martin Harvey-Olson, a 16 at the time of recording living with Lyme Disease discuss the various ways that their conditions effect their day to day lives. This episode was facilitated by Karin Harvey-Olson and recorded by Jennifer Pineo. (Transcript: YEAH, My Differently Abled Life)
NH Family Voices staff sits down with Dr.Nina Sand-Loud, Developmental Behavioral Pediatrician at Children’s Hospital at Dartmouth Hitchcock Medical Center and has a conversation about developmental screening, tools and questionnaires used, the role of parents, and the benefits it provides to growing children.
New year, New Guidance for pediatricians… while this clinical report was released in 2019 in Pediatrics, it is NEW and serves as the first AAP update in a decade for pediatricians as to screening, diagnosis and treatment guidelines for Autism. While this report is intended to guide pediatricians, it is equally as important to guide families in what to expect, what to seek and how to better partner with providers for our kiddos!
Watch Me Grow (WMG) helps families to track their child’s growth and development. It is NH’s developmental screening, referral and information system for families of children ages birth to six years.To learn more go to Watch Me Grow NH.