Our publication resources are identified by topic. Many have been developed by NHFV to assist families and professionals as they care for and work with children and youth with special health care needs. Other publications are by partner organizations and national entities.


The Take Control of Your Health Series is a set of resources to educate teens and young adults about taking an active role in managing their healthcare. The four card set covers the topics of managing appointments, medications, health insurance and health information. Each subject card outlines how to get started, important facts and what questions to ask to get the information needed to become more independent. Parents can use these tools to start a dialogue with kids about the transition from pediatric to adult healthcare. Tweens and teens will find the cards useful as a starting point for gaining more independence and practitioners can distribute them to the young adults and families they work with.