There Are No Alligators in Heaven!: A family’s perspectives on surviving the unrelenting savagery of Cystic Fibrosis

Jennifer Hale was diagnosed in 1974 with Cystic Fibrosis (CF), an incurable genetic disease. At that time, children with CF… More There Are No Alligators in Heaven!: A family’s perspectives on surviving the unrelenting savagery of Cystic Fibrosis

Tube Feeding And Cystic Fibrosis

Tube feeding can be a healthy decision for individuals with cystic fibrosis. The decision is never easy. This multi-part video… More Tube Feeding And Cystic Fibrosis

Wake Up Beautiful Girl!

Lilly has a pretty cool life. This story shows that she has to do a few extra things when she… More Wake Up Beautiful Girl!

The Power Of Two – A Twin Triumph over Cystic Fibrosis

An intimate portrayal of the bond between  twin sisters, and their lifelong battle with cystic fibrosis. Their story reflects the… More The Power Of Two – A Twin Triumph over Cystic Fibrosis

Every Breath I Take

With her co-author, Chynna Bracha Levin, Claire describes with precision, honesty, and humor what it’s like to live with a… More Every Breath I Take

Taking Cystic Fibrosis To School

Jessie talks about having CF. Appropriate for elementary age…. Includes CF quiz for kids at the end, and ten tips for teachers.

Let’s Look At Me

This coloring book/ journal is designed for children with CF to assist them in understanding their feelings, dealing with their experiences.… More Let’s Look At Me

The Spirit Of Lo: An Ordinary Family’s Extraordinary Journey

An ordinary family is faced with an extraordinary challenge, a child with cystic fibrosis. This is their story, rich and… More The Spirit Of Lo: An Ordinary Family’s Extraordinary Journey

My Heart Is Full Of Wishes

This is an imaginative book written by a young boy with Cystic Fibrosis. The story talks about some of his… More My Heart Is Full Of Wishes

Cystic Fibrosis In The Classroom

Booklet providing overview of CF, and its affects on a child. Information on nutrition, exercise, clearing airways provided. School issues… More Cystic Fibrosis In The Classroom