Family-centered care. Because families are at the center of a child's life, they must be equal partners in decision-making and all
aspects of the child's care. Family-centered care is community-based, coordinated, culturally and linguistically competent, and guided by
what is best for each child and family.
Partnerships. Family-centered care is based upon strong and effective family- relationships built within the context of families' and
professionals' cultural values and practices to improve decision-making, enhance outcomes, and assure quality.
Quality, access, affordability and acceptability. Children with special needs deserve primary and specialty health care that is of high
quality, affordable, within geographic reach and respectful of family and community culture.
Health systems that work for families and children. Health policies and systems built on a foundation of family-centered, culturally
and linguistically competent care must be the standard for all children.
Informed families/strong communities. Like their peers, children with special needs deserve every opportunity to enjoy a happy and
healthy childhood at home in their communities. Families equipped with reliable, accurate information about ways to support their child's
health, education and social development will help them grow into productive adults as defined by their personal, family and community
cultural beliefs and values.
Self-advocacy/empowerment. When informed and supported, young people with disabilities can make choices and advocate for
Mission & Vision
Through our national network, we provide families with tools to make informed decisions, advocate for improved public and private
policies, build partnerships among professionals and families, and serve as a trusted resource on health care.
|Every child and youth with special needs receives family-centered care